January was a
slightly very negative month for me, so I must admit I’m glad it’s over. Now we’re over half way through February and I’m wondering where the time is vanishing. With nights getting a little lighter a little earlier, I’m very much welcome to the idea of spring sooner rather than later.
My body isn’t doing well with being so cold, my brain is all over the place, my emotions aren’t so perky, I’ve had to cancel a pain management appointment because I couldn’t face it, my sleep is completely haywire and I’m just riding it out. So, what else has been going on?
I’m not a cat person. I want a golden retriever. But, as I seem to have a cat who can sometimes be adorable when he’s not scratching you, I often find myself really loving this little guy. I’ve not been sleeping well at all and he’s regularly been keeping me company, where he can snooze for hours and hours. At least someone gets some sleep around here! He’s also loving his new IAMS Naturally food, that I was able to test free with the Trnd panel, so at he’s a happy chappy at the moment.
One of my 2018 bucket list things was to read Anne Frank : The Diary of a Young Girl. Admittedly, I only got as far as adding three things to my list and I really need to get in the mind frame to work on it properly, preferably before the year is over… Anyway, this was a book I couldn’t quite believe I hadn’t read before. It’s one of those must-reads, and I can now say I’ve read it.
I was surprised to learn how many (several) variations of the diary there have been. It wasn’t as focused on the war and the events outside of the Frank family as I had anticipated, either. It was more of an intimate look inside the mind of a young teenager, a girl that’s coming to terms with the highly unusual and strained situation she finds herself in as she explores who she is, provides commentary on her relationships and the people around her, and discovers her passions.
Yes, I cried at the end a little, and it’s hard not to when you know why her diary abruptly ended. Anne was a surprisingly adept writer for her age and this is a book I will proudly keep in her memory and would recommend to anyone who hasn’t already read it.
Next up was to purchase The Subtle Art Of Not Giving A Fuck. Done. Ticked off my list and I’ve made a start. Loving it already! I’ll post up a little review when I’m finished but I can tell this is one I’ll keep hold on to for future reference when I need reminders to give less fucks about unimportant stuff!
I’m A TalkHealth Blogger!
TalkHealth got in touch with me, having seen InvisiblyMe, and asked if I’d like to be a volunteer blogger. Of course, I said yes. Okay, so it’s not a paid thing and money worries are still a huge concern for me, but it is wonderful to be asked and to be able to reach out on another platform to others who may be struggling with chronic invisible illnesses. My first post – What I Want You To Know About Invisible Illness – has just been published! You can check it out here if you’d like to 🙂
The Handy Mystery Update
When I went for specialist tests in Bath, having been referred by a Rheumatologist in Bristol, I was easily diagnosed with Raynaud’s, and a little later & less easily with undifferentiated connective tissue disease. The issue of the colour of my hands was commented on (“that’s very odd”) but then forgotten in light of the other things that were then focused on. I was discharged promptly back to my local rheumatology department, and haven’t really got much further since.
However, I think the hand mystery has now been solved, at least partly. My left hand in particular, on the palm and underside, is always a strange colour; sometimes patchy bright red, other times a horrible purple. My hands (and arms) are so often absolutely freezing, but there are also odd times, like at night, where they feel like they’re burning, itchy and and bright red. Erythromelalgia wasn’t something I’d ever come across before, but it’s something I want to discuss further with someone to see if this mystery will help solve any of the other mysteries with my body. I should probably work on how to pronounce it first. Do any of you suffer with erythromelelgia?
Whatever your plans for this week, I hope you have a good one. Listen to your body, make sure to get a few smiles in wherever you can, and look after yourselves.