Home General Info & Awareness 7 Things I’d Like You To Know About Migraines

7 Things I’d Like You To Know About Migraines

by InvisiblyMe

Migraines can be debilitatingly hellish to endure and yet modern science still doesn’t have a comprehensive understanding of them, nor can modern medicine successfully treat them all. Social understandings of migraine are often limited, so here’s a quick look at my experience and 7 things I’d like others to know about migraines. 

[ June is the International Headache & Migraine Awareness Month ]

My Migraine Experience 

Prior to 2015, I’d had odd migraines here and there, but they didn’t interfere much with my life when there were only a couple a year. They were what I would call pretty classic in presentation; aura, light sensitivity, nausea and then I’d vomit, which would call an end to the episode within about two hours. I never had it on waking up, I didn’t get eye pain, I didn’t take prescription meds and it didn’t affect my work or social life. 

Then it all changed in 2015. This is thanks to a nightmare surgery and severe autoimmune response to a medical implant. The experience has been so different that I wasn’t convinced they were migraines at all. I’d entered a hell-on-a-loop cycle.

These migraines have been chronic in regularity, sometimes happening twice a day to lead to an average 28 episodes a month. I’d often get migraines on waking, alongside autoimmune inflammation in my face. I dreaded waking up because it was a level of horror that I can’t adequately describe. The migraine experience for me the last several years has predominantly featured pain in one eye that can be unbelievably intense and overwhelming. Then nausea hits me square in the face. Without medication, I throw up but continue to feel awful because the migraine doesn’t disappear. It’ll continue for hours, days. All I can do is keep myself from jumping out of a window. 

It makes me feel utterly awful, the pain too sickening to focus, and it renders me non-functional. Only Sumatriptan can make it stop. Migraine postdrome also occurs more often than not, leaving me feeling washed out and shaky.

I’m very fortunate because I’ve found Sumatriptan has worked well for the most part, but I don’t get enough medication to cover every attack, despite an extended prescription to allow for more tablets each month than is usually given. 

I’ve also had to fight to keep my medication. A pharmacist at my GP practice has tried to take me off it more than once, despite her not knowing my situation, using incorrect reasoning of medication-induced migraine that did not apply in my case, and not paying attention to what my neurologist had written in my notes. It’s part and parcel of NHS cost-cutting and political moves to reduce certain prescription statistics like those given for Triptans and opioids. 

Seeking help hasn’t been easy. I’ve seen two neurology specialists. The first neurologist I saw made the appointment into a competition, telling me he used to have worse migraines than I and that his magically disappeared when he turned 35. He told me to wait until I turn 35 and mine will probably end, too. I kid you not. That was his diagnosis and treatment right there, and I vowed to never see him again.

The second neurologist, who I current see, is far more considerate of what I have to say and appreciative of what migraines are and why I’ve been struggling. I’ll be eternally grateful to him for at least caring and trying to help. After testing out other prophylaxis treatments with no success, he put me on Ajovy injections. This may soon need to be changed as I don’t think I’ve had a high enough level of improvement to stay on them with NHS funding. In addition I take Naproxen, which I requested from my GP for the widespread autoimmune inflammation.

The two medications together have helped, because even the odd migraine less each month is a miracle for me. But yes, I still do get a lot of these atypical migraines each month. For the past 5 months, the episodes have been closer to 20 than 28 per month. It’s still far too much, but I’m grateful for small mercies.

7 Things I’d Like You To Know About Migraines

1. Migraine Can Be Chronic

For some, a migraine is an occasional experience, once every so often. That’s referred to as Episodic Migraine. For others, it becomes chronic, experienced with greater regularity and usually over an extended period of time. It’s estimated that around 148 million people worldwide suffer from chronic migraine.

Chronic migraines are usually deemed as such if they’re experienced more than 15 days each month. The impact this can have on a sufferer’s life is potentially huge, affecting their physical health, mental health, work and social life. It can become a never-ending loop of migraines, both unpredictable and yet so routine it becomes devastating.

2. Aura Is Not A Requirement For Migraine

It’s often thought that experiencing visual aura or other visual disturbance is a necessity for it to be a migraine, which isn’t true. You may or may not get aura, blurred vision, light sensitivity etc. It’s thought that it could be as little as 10% of migraineurs that actually experience aura, and only 15% that vomit during an episode.

Related Reading : 15 Surprising Facts About Migraines & Their Prevalence

3. Migraine Comes In Different Forms & They Can Change Over A Lifetime

There are several different types of migraine. For instance : 

Vestibular migraine / Migraine with and without aura / Migraine with brainstem aura / Hemiplegic migraine / Menstrual migraine / Abdominal migraine / Chronic migraine / Retinal migraine.

A person may experience one type of migraine during their lifetime, or they may experience different forms at different times. Or they may not fit into one category neatly at all. And even if they did, it may change over the course of a lifetime. The why and how this can happen isn’t often known. 

The causes, symptoms, general experience and treatment outcomes can vary drastically between each person, even if they’re diagnosed with the same type of migraine. 

A black and white photo of a man in a polo shirt with his hands up by the temples either side of his head. He's grimacing as though in pain suffering a migraine, and the colour red has been superimposed across his forehead to suggest pain.

4. Migraine Triggers Don’t Always Apply

A lot of internet articles and medical professionals talk about migraine triggers. It’s suggested migraineurs look at what may precede the migraine, what might cause an attack, what might set it off or make it worse. It could be anything and everything, from food types, pollen and stress, to certain smells, menstruation and temperature. 

While it’s true for some with migraines that there are triggers to start or make worse any particular attack, that’s not always the case. Plenty of people with migraine find there to be no triggers and no explanations as to why it happens when it does, perhaps in particular when it comes to chronic migraine. That makes it all the more challenging because there’s nothing we can do to prevent attacks or lessen their impact on our lives by changing or avoiding particular triggers.

5. Migraine Can Be Incredibly Debilitating

A migraine has the potential to render the sufferer non-functional both mentally and physically. It can be hell for the sufferer, a period of waiting for it to end and doing all you can simply to survive it. 

It’s far more than a headache, and getting the two confused can be very insulting to those that live with chronic migraines. There’s also more to the experience, from visual disturbance and light sensitivity, to facial pain, neck pain, poor concentration, nausea and vomiting.

When a bad migraine hits, it can mean rolling around in bed, curtains closed, wearing an icy cold eye mask, whimpering, begging for it to go away, throwing up, and just repeating that for an hour, two hours, six hours, or however long it takes until it either stops naturally, you fall asleep, or you take medication. If I suffered with a migraine for a few hours and then somehow fell asleep, I’d wake up still with the migraine unless I take Sumatriptan. You can feel so rough and unwell that you can’t focus, talk, think straight or even move. It can make you feel not just frustrated but deeply hopeless.

As it’s an invisible illness and many live with migraines almost in secret, not showing the world what they’re going through when it happens. It feels like others don’t “get it” or don’t believe us when we say how bad it is. But I can assure you that it’s bad, so bad in fact that chronic migraines alone can rob some people of a work life, social life, sex life and family life. 

They’re not just debilitating at the time of the experience. They can interfere and interrupt other aspects of your life because they’re unpredictable and don’t keep to a socially appropriate schedule. Unfortunately, people can’t just have migraines outside of work hours or when there isn’t a family function. 

A woman lying back on a sofa with a pained expression on her face as she holds an ice bag to her head as though suffering a migraine.

6. Medications Can Cause Symptoms Of Their Own

Migraine medications come in two types : Prophylaxis medications to help prevent migraines from occurring, and treatments that are taken when a migraine episode has started to try to stop it. 

There’s also the issue of medications potentially causing more migraines, referred to a medication overuse headache. I think some patients will know this is not the case for them if they were already experiencing many migraines prior to seeking medical treatment. 

Many of the migraine prophylaxis treatments available were previously used for other conditions, like epilepsy. Somewhere along the line, scientists and researchers found they could be helpful in migraine prevention, too. Unfortunately, many of these come with a long list of side-effects and not everyone will find a prophylaxis therapy that’s both effective and actually tolerable. 

I’d tried a few myself before being put on Ajovy and found each of them to be hideous and unbearably awful in terms of side-effects, and none of them even touched my migraines. Patients can go through a lot of trial and error with a lot of medications before hopefully finding something that can help, and it’s a case of seeing whether the benefit outweighs the cost of side-effects.

Some people won’t find a preventative that works for them, in which case they have to hope to find a treatment that can minimise or stop a migraine once it has started.

Such treatments to be taken once a migraine has started are somewhat limited and most of these are triptans, like the Sumatriptan I take. As with all medications, there can be side-effects and what works for one person may not work for the next. The goal is getting something that helps, that’s also tolerable enough to take without causing too many problems of its own.

Related Reading : 7 Migraine & Headache Helpers

7. The Migraine Party Can Continue With Postdrome

Once a migraine has gone, either naturally or with medication, some migraineurs experience another slice of joy for some time after: Migraine postdrome. Think of it as a dessert to the main meal of the migraine. 

It’ll be different for each person, but postdrome typically makes you feel generally rubbish for some time after. I experience postdrome more often than not after migraines, and the time it lasts can vary between half an hour to several hours. I’ve had a migraine end at 1pm after medication and been so poorly and washed out until 6pm, and it’s only then that I’ve come around and feel more aware of where I am. 

Postdrome can leave you feeling exhausted, unable to concentrate and focus, weak, shaky, nauseous and completely drained of life for some time after the crux of a migraine has ended.

A black scroll divider.

If you don’t suffer with migraines, do you have any questions about them? If you do experience migraines, what would you want others to know them?

Caz  ♥

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Note : If you start experiencing sudden headaches or migraines, please speak to your doctor. Migraines should be investigated to ensure there’s no other underlying cause. If you have any concerns about your migraines or treatment, seek professional medical guidance. 

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49 comments

Ashley June 27, 2022 - 4:46 pm

That’s horrible that a pharmacist, the NHS, or anyone would want to take meds away from you.

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InvisiblyMe June 29, 2022 - 2:41 pm

Most recently I’ve had a doctor try to take away the injections I have for pernicious anaemia, which is a potentially fatal condition without treatment. He clearly doesn’t understand PA and I tried to explain things, why the stuff he was saying was wrong and point him towards the info on the internet, but he ignored it all. It’s all about money and stats now, picking off the easy targets every time…

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Greg Dennison June 27, 2022 - 6:48 pm

🙁

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InvisiblyMe June 29, 2022 - 5:38 pm

Sad face indeed. I feel for all those with bad migraines that can’t take medications when an attack comes on. I can’t even imagine that, it doesn’t bear thinking about.

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Smelly Socks and Garden Peas June 27, 2022 - 7:24 pm

Small boy has had a few migraines, nor chronic thank goodness at his age. He presents late in the day with a very sore head and firm, painful tummy. If we try to get him to eat (if he doesn’t tell us how he feels), he vomits immediately, then goes to sleep and wakes up 12-14 hours later and wakes up fine most times. Once he’s been sick again in the early morning and then slept another 3 hours. It’s horrid for him because he recognises the feeling now and knows it’s going to be painful and he’s going to have to be sick to make it go away, so he gets upset too. The Dr said it’s a classic childhood migraine and they don’t medicate young children unless they suffer regularly (he’s maybe 3 times a year), hopefully he’ll grow out of it when he hits puberty.

It’s good to read that you have treatments that help a bit at least. Have you read From Finland with Love by Ellie Alanko? You might like it and recognise someone with familiar migraines.

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InvisiblyMe July 4, 2022 - 2:39 pm

Poor Small Boy, that must be a horrible experience for him. As much as I can moan about how miserable my migraines are, I realise I’m fortunate they’re happening in adulthood rather than as a kid. Depends on how you look at it of course, but I always think it heartbreaking to imagine a child living with a health problem. The presentation with needing to vomit to then get better sounds more like my ‘classic’ migraines I’d have years ago. I’ll keep my fingers crossed it stays at only maybe 3 times a year and ends entirely before you know it 🙏 Thank you for the book recommendation – I’ve not read it so I’ll make a note to check it out and see if it’s in my local library. Sending my best wishes to you & yours 💜 xxxx

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Marilee Wein June 27, 2022 - 7:26 pm

I just cannot imagine weathering the intensity of pain you describe. But you do. So then knowing there are times you could have relief but are denied, well, I just cannot imagine weathering that either. Such an important article on several levels.

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InvisiblyMe July 4, 2022 - 2:43 pm

Thank you very much for your kind comment, Marilee 🙏 I find it hard writing posts like this because I feel like I’m whinging, but I do think it important to raise awareness and so others going through similar don’t feel quite so alone in it. As for medications being denied or limited, it’s a never-ending saga that boils my blood and sadly I know many experience it for different meds and conditions. I hope you have a lovely week ahead xx

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Sandee June 27, 2022 - 7:56 pm

My mother had migraines. So hard to watch her back then. I’m happy I’ve never had a migraine. Great list.

Have a fabulous day and week, Caz. Big hug. ♥

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InvisiblyMe July 4, 2022 - 2:53 pm

I’m sorry for what your mum had to go through with hers. I’m very glad you’ve never had a migraine, too! I hope you have a lovely week ahead, Sandee 🌻

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Ned Hamson June 27, 2022 - 7:59 pm

I find it hard to believe there are people in medicine or serving medical patients who do not listen or believe patients who need help to endure/relieve the pain of migraine attacks. I used to “eat” aspirins like candy until I found ways to control my type of migraines. My hope is that new treatments are soon developed to help with this debilitating affliction and that people in medical practice get better at listening to and helping their patients.

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InvisiblyMe July 4, 2022 - 2:59 pm

It’s disheartening to know that medical professionals can be like this, fobbing patients off or simply not caring. It’s surely their job to care and that’s what they’re paid for. “First do no harm”, yet in dismissing patients or not helping with medication, they’re causing harm. I’m sorry you’ve had such awful migraines yourself and had to resort to Asprin so heavily. Have you found your migraines have reduced in frequency, or just that you’ve found new ways to manage each attack? Either way, I really do hope you have some relief and something to help you. Here’s to hoping more treatments are developed in the near future, available to all who need them. Thanks for sharing your thoughts, Ned 🙏

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Carolyn Page June 27, 2022 - 9:26 pm

As Keith and I were driving to an event it came over the radio that scientists (in Australia) investigating migraine had found a link to those with smaller brain size being more prone to migraine due to impeded blood flow.

– A study led by QIMR Berghofer researcher Dr Brittany Mitchell, published in the journal Brain, has shown for the first time the genetic links between brain size and migraine risk. Our research found that a smaller brain size and smaller structures within the brain, such as the hippocampus and the amygdala, cause an increased risk of migraine, and that this might be due to shared biological pathways that affect neuronal signaling or the regulation of blood flow,” Dr Mitchell said.

Here’s the link, should you be interested! – https://www.qimrberghofer.edu.au/news/migraine-genetics-and-brain-size/

This may not have a link to your condition, Caz. However, it does bode well for migraine sufferers in general (Keith included) for more research and possibly more effective treatments.
xoxoxo

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InvisiblyMe July 4, 2022 - 3:03 pm

So you’re saying the problem may be my small head? I wish I were big-headed now 😂 Thank you very much for sharing this, Carolyn. It’s the first I’ve heard of this. It could make sense when talking about blood flow, and certain Triptans like Sumatriptan work by narrowing blood vessels. I wouldn’t have thought about shared biological pathways or smaller structures relating to migraine though. This is certainly an interesting avenue to explore, well done to the Australian scientists! I’d definitely like to learn a little more about this so thank you again for sharing it 🙏 Sending lots of love to you & Keith – I hope you’re both keeping well and that the week ahead treats you kindly xx

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c.a. June 27, 2022 - 9:52 pm

Dear Caz,
My heart goes out to you, in that I do not understand anything about migraines, other than what you and a couple of friends (whom I have referred to your blog) have told me. You and your mum are still in my daily prayers that Father will bring you relief, either through wisdom He has given medical science, or apart from that, simply a miraculous healing. I know He can, but I understand even less about ascertaining the Mind of Christ for recognizing when and where He WILL heal. But I keep asking, hoping that someday, He will say, Yes, and heal you from your migraines.
❤️&🙏, c.a.

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InvisiblyMe July 4, 2022 - 3:06 pm

Thank you for your kindness, C.A. I’m glad you don’t get migraines, I hope it stays that way. It’s funny, I can’t imagine not living with migraines now and it seems strange to know others don’t get them, like how my parents have never had a migraine before either. I wouldn’t say no to him stopping my migraines, but I’d ideally like Christ to spend his time with others who are more in need than I am, to heal their ills and health conditions. Just imagine a world without health problems, wouldn’t that be something? I hope you both have a great week ahead 🙏

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Svet June 27, 2022 - 10:39 pm

Big hug Caz! Reading what you are going through and deal with, I am praying for you always and thinking of you.

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InvisiblyMe July 4, 2022 - 3:51 pm

Thank you very much lovely, that’s really kind of you. There are those who deal with far more than I do, so I still have much to be grateful for. Migraines I am definitely not grateful for though! Sending love, Svet – I hope you have a great week 🌻 xx

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Becky June 28, 2022 - 10:42 am

This is such an interesting post. I’ve never had migraines so didn’t know much about them. My best friend at primary school had them but only when she ate chocolate.

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InvisiblyMe July 4, 2022 - 4:12 pm

I’m glad you’ve never had a migraine, I hope it stays that way! It’s interesting some people get them related to a very specific trigger, like your friend at school did after eating chocolate, and others have no triggers at all. x

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Despite Pain June 28, 2022 - 5:09 pm

Oh Caz, you have my sympathy with this. I suffered from chronic migraines too and the only thing that really stopped them was me going through an early menopause. Doctors put me onto HRT after that and my migraines started again so I refused HRT. Fortunately, unlike you, mine didn’t make me sick. But they were almost daily with a visual aura. And the postdrome part was like having the worst hangover.

I wish I could suggest something to help you. Chronic migraines are truly debilitating on their own but when you are living with other chronic and painful conditions, it becomes more than debilitating. I don’t think there is even a word to explain.

Take care and thank you for highlighting this with your brilliant post. Many people have no idea that migraines can be chronic.

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InvisiblyMe July 5, 2022 - 11:19 pm

I’m sorry you had such horrible migraines and postdrome, too. I’m glad at least the early menopause had the one silver lining of curtailing the migraines. It’s interesting HRT restarted migraines. I wonder if your migraines were related to hormones directly or indirectly, thus them stopping when menopause hit? You’re right, migraines are just another thing on top of other health and pain conditions for many people and it’s no walk in the park. It’s hard when you’re going through it and find very little support from those around you or medical professionals, so it’s important anyone experiencing it knows they’re not alone, that they’re believed, that we know how debilitating they can be. Thanks for your thoughtful comment, Liz 💜 xx

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Blanca June 28, 2022 - 6:51 pm

Very interesting post, Caz, anyone who suffers from migranes can relate to this. I really hope you find a way to reduce these chronic migranes soon. I suffer from very bad migranes occasionally and they really are debilitating. I get horrible pain in one eye, nausea and excruciating pain in one side of my head. My migrane postdrome part is also bad, as sometimes it takes me a couple of days to feel back to normal. I found going gluten free made my migranes be less frequent, but I still haven’t found the way to eliminate them completely.

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InvisiblyMe July 10, 2022 - 6:22 pm

I’m sorry you know all too well what debilitatingly bad migraines are like. I get that pain in one eye too and it’s so strange, so indescribably horrible and nauseating. The postdrome is lots of fun, too, isn’t it? I’m glad they’ve reduced in frequency but any episode that bad is awful. Do you not take prescription medication for them at all, like Sumatriptan? If not, then you are far stronger than I. I hope that even if you can’t find a cause of them (often there isn’t one) that you can one day find a way to stop them completely. I have hope. Sending lots of love your way 💜💙💚💛 xx

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craig sabin June 29, 2022 - 1:40 am

This is an important topic and you are doing a service for other sufferers by helping educate people on this topic. I developed classic migraines after surviving a life-threatening illness and hospitalization. Their frequency kept increasing and nothing helped them (this was before the discovery of sumatriptan). Finally when I was having about 15 a month a doctor put me on a betablocker which, thankfully, reduced their frequency and severity to make them “tolerable.”

I have no triggers and no known medical cause, but in researching the other pain condition that I suffer from I discovered that migraines are one of a host of conditions that are believed to involve central sensitivity of the nervous system. Unfortunately no one knows how to undo such a neurological condition right now. I pray that this gets researched because it could be a game changer for so many difficult-to-treat conditions. It helped me a little just to learn some more about the phenomenon of central sensitivity. I really hope that your doctor will be able to stand up for you and protect your treatment. I know the agony of untreated migraines. They are unspeakably awful (but you did a marvelous job describing them, by the way).
Best wishes,
Craig

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InvisiblyMe July 11, 2022 - 11:20 pm

I’m so sorry for what you went through, both with life-threatening illness and the migraines thereafter. And that’s without sumatriptan at all, which is a hell I can’t imagine. I’m glad the betablocker helped in knocking them down a little. It’s difficult when there’s no identifiable cause that can be “repaired” and no triggers that can be avoided. It’s always worth trying to investigate possible triggers, but I wish it were better appreciated that for some people there really, truly are no triggers, or “natural remedies” to get rid of them!

It’s interesting you mention the link to the central nervous system. The pain I live with is the result of nerve damage from screws in my back. The migraines started after. They’re totally different to anything I’d had before in terms of “migraine”. The latest neurologist mentioned about the potential for it to be linked to the pain experienced elsewhere but at first I thought he was saying I’m sensitised and just have a low pain threshold (an insult if ever there was one!) You’re right though, there are odd references here and there about links to the nervous system and I really do hope scientists can dig into this a lot more in future.

Thank you so much for your thoughtful, kind comment, Craig. I hate that you know all too well what it’s like, but I’m glad what I’ve written is relatable because so many of us feel pretty alone in the experience. x

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Rachel June 29, 2022 - 5:28 pm

I’m so sorry that you experience these migraines.
I’m shocked that anyone would even think of stopping your medication which you need.
I hope, very soon, more effective treatment will be developed.
Keep raising awareness, like you do.
Take care, Caz.

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InvisiblyMe July 12, 2022 - 2:45 pm

I feel for those who have migraines but can’t take Triptans (or similar) for any reason. I struggle to get through so many as it is, but without Sumatriptan it wouldn’t have been possible. Thank you so much for your kind comment, Rachel. I hope the week is treating you well so far 🌻 xx

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Annie June 29, 2022 - 5:46 pm

Caz,

I’m latching on to this comment because once again I’m unable to comment directly—not sure why.

I also get tremendous help from sumatriptan. I’d like to tell you something my neurologist said. Can you email me?

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InvisiblyMe July 12, 2022 - 3:51 pm

I’m sorry you’re still having problems with it but the good news is that your comment came through perfectly, Annie, and as a stand-alone comment rather than reply. I dropped you an email this afternoon 😊 xx

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Ann Coleman June 29, 2022 - 10:49 pm

I’m so sorry you suffer from migraines! My father did too, but I’ve been lucky in that I didn’t inherit that.

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InvisiblyMe July 12, 2022 - 3:52 pm

I’m sorry for what your father went through with migraines, but I’m very glad you don’t get them. I find it strange to think others don’t get migraines, may have never had a single one (like both my parents). I hope you stay migraine-free forever, Ann! 💜👍

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Sarah W June 30, 2022 - 10:50 am

Oh Caz you describe the hell of migraines so well and my heart goes out to you suffering like this. I don’t think anyone really gets how debilitating they are until they actually see someone in the throes of a severe migraine. I recall the first time my mum saw me having one and she was shocked and had no idea of their severity. I think that she, in common with a lot of people, thought a migraine was “just a really bad headache”. This is a brilliant post to educate those not in the know – thank you.
Love and hugs

Sarah xx

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Lindsay July 1, 2022 - 1:40 am

Oh, Caz, I feel for you. I used to get menstrual migraines every month for 3-4 days straight. I’d just lay in bed with the lights off, occasionally get up to vomit or use the bathroom. It was awful. I’m so sorry you experience migraines regularly. They’re incredibly painful and debilitating, but it’s one of those things that I don’t think people can fully understand until they’ve been through it. Sending you hugs.

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Andrya Prescott July 1, 2022 - 10:15 am

I have around 12 migraines a month that are a feature of my ME. Sumatriptan works in relieving the migraine, but also causes some of my more severe ME symptoms – unable to support myself, collapsing limbs. I use a half dose now, repeating if necessary within 2 hour window and stay lying down for around 4 hours to make sure I am safe. I do get mirror migraines sometimes from the triptans, but I’m prepared to live with them rather than take profilactic drugs that have higher risk of issues with ME. It is complicated getting the balance right with ME, for me, heightened drug sensitivity is a concern. Thanks for your article, always good to read other’s experience.

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Ellie Thompson July 1, 2022 - 3:38 pm

Oh, Caz, you really do have an awful lot to deal with with so many conditions to contend with. I’m sorry that you suffer migraine so severely. I’m glad the Sumatriptan gives you a little relief, albeit not getting rid of it altogether. I used to get severe migraines, but I seem to have ‘grown out’ of them. I was probably in my thirties or forties then. I didn’t get as many as you, but certainly about ten times a month – nowhere near as bad as yours. I didn’t get auras or sickness (although I always felt very nauseous), but I got crippling neck pain that travelled up and over my head through to behind my eyes. I was in agony, and, like you, it left me incapable of doing anything other than lying down in a darkened room. It took a while to shake it off afterwards, too, as you described. My doctor finally agreed to dispense Zolmitriptan, but I’d only get about six tablets a month and even trying to get those was like trying to get blood out of a stone. I wasn’t familiar with the word ‘postdrome,’ so am I assuming correctly that this is what you are left with after the migraine has stopped? It’s shocking that your pharmacist tried to take your medication away. They have obviously no idea what it’s like to suffer from chronic migraine. As for that neurologist, I’m almost speechless! Did you report them at the time? I should think you would have been entitled to. Who do these people think they are!? It makes me so angry on your behalf. I think you’re doing a fabulous job writing your blog – you always have so much valuable advice and information to offer your readers. Thank you for allowing me to be one of them. Love and healing hugs for you, Caz. Ellie xxxx 💖💞💕

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The Oceanside Animals July 3, 2022 - 5:24 pm

Lulu: “Ooh, our Dada used to get migraines fairly often until he was about forty. He would have to go lie down and eventually he would throw up and then he would feel better. He says he can’t imagine what it would be like to deal with migraines 28 days a month.”
Charlee: “Why didn’t he just throw up right away and get it over with?”
Lulu: “Humans don’t like to throw up.”
Chaplin: “Hm. We cats do it all the time and it’s fine.”
Lulu: “I don’t think throwing up for a human is quite the same as a cat yakking up a hairball, Chaplin.”

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James Viscosi July 3, 2022 - 7:06 pm

I was fortunate not to have my aneurysm mistaken for a migraine by either myself or the emergency room. It did make me throw up, though.

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The Dragon's Picnic July 3, 2022 - 11:13 pm

I totally sympathize with your experience having suffered from severe migraines for several days at a time every few weeks until I hit menopause. It definitely ended up making a lot of choices for me during my life as it limited what I could do. I found Zomig really effective in masking some of the symptoms because generally once the 3-day cycle of a migraine started, making the symptoms as tolerable as possible was all you could do as the migraine would complete its cycle no matter what. Migraines are a brute to deal with so hoping you find some relief.

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Christy B July 5, 2022 - 12:27 am

I’m so sorry you get migraines like this, and that you had such a bad experience with the neurologist (it’s not a competition!). I had a doctor tell me yup those are migraines and we don’t know why some people get them but others don’t. I was like well what do I do?! I hate that pain behind the eye I get sometimes that tells me uh oh here comes the migraine… Thanks for educating others about so many important topics here xx

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Unwanted Life July 6, 2022 - 9:46 am

I’m really sorry to hear how your hell loop started with an operation. I didn’t know that kind of thing could happen. I hope your situation improves.

Interestingly enough, I saw a neurologist two days ago who suggested migraines and epilepsy as possible causes for some of my triggers. But they believe epilepsy is more likely than migraines to explain my situation

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Butterfly July 6, 2022 - 12:57 pm

Nice post🤠

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Simona July 6, 2022 - 1:44 pm

I am currently battling a nice little migraine of my own, so reading your post has made me realise that I don’t get them as bad as I thought it would be possible (though I am getting migraines since I was 14yo so it’s a chronic thing I believe). I am sorry to hear about your situation, it must be so difficult to deal with as many as you get! I am on a day 5 spree at the moment, and today I just don’t have the strength to do absolutely anything. I had no clue that medication could cause other symptoms, so I need to keep a diary to note those down too. I rarely take the same thing over and over, so I definitely need to make a point of this. I do get pain in my eyes now (it was very different as a teenager) and the same here, vomiting is my cue that the migraine is over. At least for now. So far, no nausea whatsoever so I think I still have a long way to go…

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Jacqui Murray July 9, 2022 - 3:32 pm

I so understand this. Migraines is one of my chronic problems, though in abeyannce at the moment. They sound a lot like your (and I have RA with auto-immune issues) with stabbing eye pain etc. I’d get one that lasted 4-5 days, a few times a month. Sumatriptan helped, but only 9 tabs a months barely made it. What stopped them was Aimovig shots. Once a month. Now, I get maybe one a month and it’s mild. I’m in the US so not sure how that changes things.

My heart goes out to you.

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Adelheid July 12, 2022 - 4:33 pm

Migraine has been part of my life since high school!

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Francochuks July 21, 2022 - 10:52 am

Migraine is a very bad and dreadful Illness..
I don’t wish it for anybody.

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shankjoejoe July 26, 2022 - 11:36 am

I used to get migraines in the 1990s. That’s how I originally became addicted to pain medication. Needing pain medication and being an addict is a rough combination. 😞

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shankjoejoe July 26, 2022 - 11:39 am

I pray you get the treatment that you need. 😇❤️🙏

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michelegoesglossy July 26, 2022 - 3:38 pm

I suffer as well with migranes, especially before period and unfortunately I got used to the pain, since taking medication can interfere with my thyroid medication. So I understand your pain. I wish there would be something miraculously to put away the pain. I cannot believe the the first neurologist you saw was so close minded to give an answer like that! One thing that has helped me is natural medication. Well it doesn’t take away all the migrane, but it relieves. If you know what’s triggering the migrane, you can take natural medicine to treat the issue. Also another thing we don’t pay attention is to our kidneys. Kidneys have to filter so much and if hydration levels are low, migranes can get worst too. Another thing that has helped me a bit, incredibly is botox. Botox can actually be used to relieve migranes, but only good doctors know how to apply it in a way to reduce migranes. I’m sorry you have been suffering so much of migranes. I hope you’ll find a solution that will permanently will end your migranes.

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