I’ll make this a mini update just to cover the basics of what’s happened this week. Firstly, thank you so much for bearing with me while I’ve been away this week. Secondly, a huge thanks for all the kind, compassionate comments. Thirdly, I am SO glad this week is over! It’s the most relieved I’ve been in a while. Staying at home has never sounded so good ???? Here’s a bit on my EUA surgery in London and the medical meeting in Bristol, with a little detour to the Clifton Suspension Bridge in Bristol.
UCLH (London) EUA Surgery
I’m in a world of pain & utterly exhausted, but the week has gone as smoothly as possible, all things considered.
The 2am bus to UCLH in London was an eye-opener, but the wait for the surgery was enough to make me think I’d made a mistake going. I was in so much pain and very tired and grumpy, and I started debating whether to make a run for it. I stayed because the thought of another 4+ hours of travelling home was too exhausting! The overall experience I had there was not a positive one. However, I’m glad I’ve finally been able to use my funky new weekend bag, a £12 Accessorize bargain.
The laparoscopy & other investigative procedures went as well as possible, but it was quite tricky for the surgeon due to adhesions and such, so my body went through a bit more trauma I think as a result. Nonetheless, it was a relief to speak with her afterwards for her findings & opinion. On the day I was discharged, I was very lucky because my wonderful ex, who lives in London, was able to meet me and escort me to the bus station; I actually couldn’t have physically carried my bag myself otherwise, so he was a lifesaver. That’s a silver lining to this op being cancelled in August as he wouldn’t have been around then.
I also came home with a few surprise gifts. 3 months of antibiotics, a catheter, and subcutaneous emphysema. I know I said I like freebies, but I’ve had better than these.
The subcutaneous emphysema is a new one to me. If you press your fingers to my left rib and move them across, it sounds like snap crackle & pop. It’s rather disconcerting! Apparently it’s small air bubbles trapped under the skin that have travelled from the laparoscopy.
The catheter isn’t a result of the surgery per se, it’s because I have some nerve damage and my bladder is now incredibly stubborn, hence a wee bag accompanies me home after most surgeries.
I’ve got two small incisions on the left, and apparently I was very lucky to get away with these as it nearly had to be done as an open surgery. Phew, my plans to become a swimwear model may still become a reality! ????
I’m posting this picture to show a little of the ‘reality’. Having a stoma, scars, tubes or anything shouldn’t be shameful or embarrassing.
Medical Meeting : Bristol & The Clifton Suspension Bridge
The medical meeting ‘thing’ I had to attend in Bristol went as well as could be expected. It was a long day and an early start in a lot of pain, but my mother came with me (she refused to let me go alone & she’s even more stubborn than I am!) so I wanted to make sure we did something worth her while when we were there.
The place I had to go was a short walk from the Clifton Suspension Bridge. We’ve been saying about going there for a few years. And we made it!
In these photos I know it’s a case of “you look fine, you don’t look sick”. And, of course, most people, myself included, take care to avoid close ups or adjust the lighting in photographs, too. I can’t tell you how awful I felt when I was there. It shows just how deceiving appearances can be.
My mother loved the bridge & I’m glad we got to stop off there briefly because it was definitely worth it for the smile on her face. She’s afraid of heights, so she did incredibly well! If ever you’re in the Bristol area, I’d highly recommend checking it out. I got the train to Temple Meads, then the 8 bus to Clifton Village with a PlusBus ticket I bought along with the train tickets. You can then get the 8 bus from there to the centre of Bristol, the Zoo or back to the station.
I’ll leave it there. It feels very selfish just talking about ‘me me me’. Things have certainly been difficult lately and emotionally I feel very drained. My room looks like it’s been ransacked by raccoons, I’m very behind on work/emails/paperwork, and the black circles around my eyes are telling me to sleep. I’ll hopefully be back to reading blogs again soon. Thank you all again so much for the lovely comments & messages. It means a lot. You rock!
How have you all been? I hope you’re keeping as well as possible. Be kind to yourselves and I hope the week ahead is a bright one for you all ????