Home General Info & Awareness What The Chronic Illness & Disability Benefits Cuts Mean For You

What The Chronic Illness & Disability Benefits Cuts Mean For You

by InvisiblyMe

It’s almost impossible to ignore the furore around recent UK government announcements. Almost all of the tremendous decisions made by the Labour government since they came to power in July 2024, under the tutelage of Kier Starmer, have been met with significant and widespread backlash and outrage. On 18th March 2025, Liz Kendall, the Secretary of State for Work and Pensions, announced sweeping welfare reforms. Here’s a breakdown of what that will involve and how you may be affected by these chronic illness and disability benefits cuts.

The Intention For Welfare Reform

According to the government, one in eight young people aren’t in education, training or work. Furthermore, 2.8 million people are “economically inactive due to long term sickness – one of the highest rates in the G7”. The pandemic has affected the figures, with the government stating working-age PIP claims have doubled from 15,300 to 35,100 a month, while claims from 16-24 year olds have gone from 2,967 to 7,857 a month. They further estimate the number claiming PIP is expected to “increase from 2 million in 2021 to 4.3 million, costing £34.1 billion annually.”

It’s important, however, to be aware that the government has made a number of statistics-based statements purported as fact, spread further by mainstream media, only to have been outed as incorrect by third party fact-checkers. 

There are elements the government doesn’t tell you in these statements. Such as the huge numbers of individuals acting as unpaid carers, saving the welfare system billions in professional care, support benefits, nursing and care homes. Nor do they tell you there’s an estimated £23 billion – that’s right, £23 BILLION – of unclaimed benefits each year. Or that when claiming to be tackling fraud, their own statistics state there is no fraud in PIP claims, which is literally reported as 0%.

So what exactly are the proposed changes to sickness and disability benefits? Despite significant media attention and widespread backlash, many of the specifics remain unknown. Some changes are supposition, some are clearer intentions, and some may come as a surprise further down the line. So let’s take a look at what we know for now. 

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Disability Benefits Cuts Breakdown : What We Know So Far

  • From November 2026, eligibility criteria for PIP will be significantly tightened. It’ll become more difficult to quality for PIP’s daily living component, but at present the mobility component will not be affected. 
  • The concept here is to cut the lower level of qualifying individuals from receiving PIP. Invisible physical conditions have been referred to, like fibromyalgia, as well as mental health conditions, so it’s anticipated that such individuals may no longer be eligible for PIP.
  • While Kendall has refused to reveal how many people this will affect, a third party has estimated that this is likely to mean 1 million people will no longer be eligible for PIP. 
  • PIP was designed to help cover extra costs associated with sickness and disability, though many people will point out that the assessment does not cover many such aspects, but only the actions you can and cannot take, like making dinner or washing yourself. As a result of the poor assessment criteria, many chronically ill and/or disabled individuals have their applications rejected, leaving them to appeal or else receive no support for their additional costs. 
  • PIP will then become a benefit only for the most severely sick and disabled. Or at least the most severely sick and disabled as decided by the government’s assessment. 
  • PIP Assessments will be reviewed. It’s likely this will result in greater numbers of re-assessments. 
  • PIP payments were going to be frozen over 2025-2026. The government have now confirmed the payment amounts will not be frozen and will increase in line with inflation for this year.
  • Capability For Work Assessments Scrapped

The Capability For Work assessment will be scrapped. After applying for Universal Credit and being assessed, individuals are either deemed fit for work and are expected to look for work, or are deemed unfit for work and have no work expectations set upon them for a length of time until they’re reassessed. 

Without declaring people as fit or unfit for work, Kendall claims that payments will no longer be linked to this can/cannot work divide, and any extra income will have to come only through PIP, if eligible. 

What this means in real terms for UC payments for those who cannot work is not clear. Changes aren’t expected to come into effect until 2026.

  • Rates Raised & Cut

Those who are looking for work will receive a higher rate of UC. Those deemed not fit for work who were receiving the highest rate will see their payments cut. This applies to new claimants, but those currently on the upper rate will have that rate frozen until 2030, at which point it will be reduced from £97 per week to just £50 per week. 

Meanwhile, the basic UC rate will rise by £15 per week as of April 2026. 

  • Reassessments For The Most Severely Disabled 

“I can announce for people on universal credit with the most severe disabilities and health conditions that will never improve, we want to ensure that they are never reassessed to give them the confidence and dignity they deserve.” This is likely to be a very narrow criteria and thus few claimants are likely to fall within this category. 

For all others not deemed as “most severe”, reassessments will be increased and the focus will be on face-to-face assessments rather than remote assessments. According to Kendall, “We will turn these reassessments back on at scale and shift the focus back to doing more face-to-face.”

Reassessments will be recorded “as standard” as proof for any complaints. 

  • “Right To Try”

The sick and disabled on Universal Credit can make their own decision to try to start or to return to work with a new “right to try” scheme. They can, theoretically, try employment and see if it works out. If it doesn’t, they won’t lose their benefits and have to start the application process from the beginning. The hope is to remove the fear of losing benefits and going back to square one that may prevent some individuals from trying work when they’re unsure if they’re able to do it or not. 

  • Support Package

Liz Kendall has referred to a £1 billion package designed to support individuals with long term chronic health conditions and disabilities to get into work. It’s unclear what this “support” entails. 

  • Incapacity Benefit For Under 22s Scrapped

Those under 22 years old will no longer be able to top-up Universal Credit with incapacity benefits as they will be banned from doing so. The government has focused on the increasing number of young people not currently in work/training/education, and they believe this will prevent more school leavers from claiming sickness and go into work instead. 

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Job seeker’s allowance (JSA) and employment support allowance (ESA) are going to be combined. This should allow individuals who have paid into the system through working and paying taxes to receive slightly higher benefit payments, for some period of time at least. 

This merger will result in a time-limited form of unemployment/income ‘insurance’ paid at a higher rate, and claimants won’t have to prove their inability to work. As per Kendall, this will provide you a little more money “while we help you get back on track” and back into work. 

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Kendall has tried to package cuts as being a moral action to help people and thus help the country’s finances : ”Millions of people who could work [are] trapped on benefits”, and the benefits system is ”holding the country back”.

The government says this about the changes: “Changes will unlock work, boost employment, and tackle the broken benefits system to unlock growth as part of the government’s Plan for Change”.

Unfortunately, the reality real people face is looking very, very different. As Diane Abbott said, the government is trying to “balance the country’s books on the back of the most vulnerable people and poor people in this society”.

A black background with neon coloured paper cutouts of different shapes and sizes of people to suggest disabilities and invisible illnesses. Below is the post title: Welfare Reform - what chronic illness and disability benefits cuts mean for you.

I imagine there are a number of these going around, but there’s one petition gaining traction on 38 Degrees. Feel free to sign your name to the disability benefits cuts petition if you wish to ask the government to rethink their cuts.

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I’ve tried not to impart too much of my own opinion here, though it’s difficult to remain neutral. I can understand the need for reform in some ways, but not like this. It’s sickening and outrageous when the government can claw back so much more from elsewhere… but those are not easy targets like the elderly, poor and/or sick and disabled.

Caz  ♥

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16 comments

Cheryl Batavia March 23, 2025 - 1:53 pm

I am sorry to hear about cuts to disability payments in the UK. I have two disabled children and worry about defunding and personnel cuts in the US agencies and programs that protect them, Take care! 💕

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Paula Bardell-Hedley March 23, 2025 - 2:07 pm

The whole thing’s an utter disgrace! 🤬

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The Oceanside Animals March 23, 2025 - 5:14 pm

Java Bean: “Ayyy, the government is citing or just plain making up dubious statistics to justify massive seemingly incoherent cuts to programs with no rhyme or reason? Did you move to the U.S. without telling us???”

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Cindy Georgakas March 23, 2025 - 5:32 pm

Caz, thanks for sharing this important read and so sorry you are dealing with this. Only those that have needed the support know the necessity. Our family would have gone broke if not for the system support of mental illness which has been vital for him and his family.

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Looking for the Light March 23, 2025 - 5:32 pm

It’s the easest target approach. Disgusting!

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Nancy Homlitas March 24, 2025 - 12:48 am

I hope you’re not harmfully impacted by the disability cuts. With the popularity of “work from home” jobs now, maybe individuals not severely disabled will be given the opportunity to work. Good luck, Caz! 🙂

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B March 24, 2025 - 9:50 am

Disgraceful. That’s all I can say.

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Catherine Green March 24, 2025 - 4:54 pm

I despair of the whole system, to be honest. I live with a rare chronic condition (Lymphodoema Distichiasis Syndrome) that severely affects my vision and yet I am not deemed eligible for PIP. I applied and was assessed late in 2024 having never applied in the past because my condition is not recognised on the government’s ‘approved list’ of disabilities that require support. I was born with the condition and treated privately as a child until they turned me over to the NHS at the age of 16 because I was never going to be cured. I spend my adult life visiting hospitals and trying experimental procedures.

I cannot work a full-time job and am instead stuck in a minimum-wage retail job that leaves me sore and grumpy from working under bright lights and air conditioning, my vision deteriorates as the day wears on, and I do not earn enough to support my family. My husband’s full-time wage barely pays the bills and he was diagnosed autistic last year in his 40s. He dare not quit his job and seek financial support because we have a mortgage and children to pay for, so he struggles along working 60+ hours per week and unable to afford holidays. We are stuck with no access to benefits of any kind!

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Joe March 24, 2025 - 9:08 pm

Bad news every day 🥴

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Darnell March 25, 2025 - 5:03 am

This is genuinely unbelievable. I appreciate you bringing us the facts. Always be as well as you can be. 💓

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Miriam Hurdle March 25, 2025 - 5:57 am

This is horrible news, Caz! Trgetsing the elderly, poor, sick and disabled is a terrible thing to do to the citizens. What does it mean to you personally then? I hope it won’t hurt you too much. <3

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Wendy Holcombe March 25, 2025 - 6:55 am

It’s shameful what our countries have been doing! Trump is mad with power!! Can you believe he closed the Center of Disease Control.(CDC)? after COVID? It’s scary! I can’t look at, or read, the news, it stresses me so much, it triggers depression and PTSD. I hope the cuts aren’t as bad as it seems they will be.
Been missing you. xo wendy

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Penny March 25, 2025 - 10:47 am

Great piece, as always, Caz. Thank you so much. I’m glad that the disabled and chronic illness communities continue to share the realities of what these proposals will really mean for people. There is a letter to the Chancellor and MPs via Scope’s website, that folk can put their names to. Over 100 charities have so far. Xx

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George March 26, 2025 - 9:51 pm

I’m commenting from the US, so I’m not truly up on your system, it’s good points, or it’s bad points. I do know that some bloggers complained about the Tories and hoped for Labour. Very frustrating to have this.

We have a different situation here. Our new Department of Government Efficiency (DOGE) has discovered that there are as many dead people collecting Social Security as living people. The mainstream press is telling its followers that cuts are being made. I guess they are; you must be alive to qualify.

I wish y’all the best. Hang tight, and maybe you can get the ear of someone who can help. – George

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Unwanted Life April 3, 2025 - 7:53 am

I’ve claimed disability benefits in the past, and ESA more recently, but was denied PIP even though my health was worse than when I was able to claim disability benefits. I’m not sure they need to make it harder to get PIP when it’s already very hard to get. I’ve contacted my MP to complain about this changes, as they’re ridiculous

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Priti April 13, 2025 - 5:13 pm

That is sad . I can say it.

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