Mini Me Update : A&E & Emergency Surgery

A watercolour feather background. Overlaid is the title: Mini me update A&E and emergency surgery, the week from hell.

An A&E Spanner In The Works

Hellooo, how’s everyone doing? Firstly, my apologies for disappearing off the face of the earth suddenly for a while there. I tried to post the odd updates on Facebook and Instagram, but for those who don’t follow on those, I basically had a few problems. Thought it was the usual stoma shenanigans, but ended up in A&E and having emergency surgery. Got home yesterday and I’m utterly exhausted. Week from hell sums it up fairly well. It may sound completely melodramatic, but honestly, in my opinion, it has been utterly traumatic from start to finish.

Needless to say, I’ve fallen behind on absolutely everything; hundreds of emails I’m yet to open, numerous appointments I’ve had to cancel, my room looks like it’s been ransacked, washing has piled up, I’ve got oodles of hospital supplies thrown over the floor when I literally just landed back home, and I’ve been able to do nada on the blogging front.

Note – I drafted this in the middle of the night when I couldn’t sleep & my brain is mush so apologies in advance for any errors on this occasion.

A&E : A Week From Hell

I’d been feeling ‘off’ and worse than my usual baseline for about 2 weeks, and started wondering whether it was another virus of some description. I didn’t know whether or not it was related but then on Saturday night I had stoma problems again. Didn’t sleep all night and pain was getting ridiculous so I figured it was the normal thing of my insides twisting. They do like to do the Twist and the jive from time to time, even though I tell them there’s no dancing allowed in there. Sunday morning, off to A&E in agony.

An image of me in a hospital bed covered in blankets. I took it looking down so you can see my arm with the IV and legs.

Emergency Stoma Surgery

My stoma had totally stopped working, I was on IV morphine and had various tests done because they said things seemed a little different this time. Worse, but they couldn’t pinpoint the exact location of the issue and they couldn’t even get the camera scope in there.

The problem with A&E is that you have ward rounds in the morning with the surgical consultants on duty, which can vary from day to day. The first day I got a good one; the next two days, I did not. The first surgeon (well known, positively regarded by others on the ward) says ‘it’s likely another twist but maybe also one higher up, and surgery would probably be needed, it was just a case of whether it would be a big open surgery, a revision of the stoma, or having to re-site it elsewhere.’

The next surgeon I saw, I didn’t trust in the slightest (nobody knew who she was either, my best guess is she wandered in off the street). Maybe it was gut instinct, or the way she was talking about things. Maybe it was how she came across to me as being too dumb to be a surgeon when she ends the consult by turning back to me and saying, ‘you have a stoma, yes?’. I voiced my concern the first day to a lovely doctor consultant chap there, though I wasn’t 100% sure of his his actual role/title. He listened, said he’d be there the next day and it would be okay.

An image of me in the hospital bed with red eyes on the verge of crying (again!)

The next day, the same dubious surgeon returns. I tried to give her a stern look, but with my morphine face (scrunched in pain, snotty and teary) I’m not sure I managed it. She couldn’t answer a single question I had. Her response to the tests was to ignore the first that showed a twist and that because she couldn’t see exactly what the other problem it meant there was probably no problem, just lie flat and go home later and see how you get on.


I was rolling around, hysterical, and losing my shit. I’d reached breaking point and it was a dark place.

An image of me looking worse for wear with an NG tube up my nose.

But, I tried to challenge this with all I could muster. Going back through what the first surgeon had said, what’s happened before, the problems I have with a small bowel that dances the Twist, the symptoms now. She shrugged her shoulders. I said she was leaving me there to die. And she left.

A few hours later, the lovely consultant chap returns. He says don’t worry, I can see what might be going on with the test results and I know she’s completely wrong. He said he went out on a limb to contact the first surgeon, and he reappears a short while later.

If they didn’t act to operate, I would die. What the first surgeon was suggesting, that it was nothing and to do nothing, would have killed me.

Spoiler alert – This bit is rather grim so don’t read if feeling queasy or you’re if you’re eating! My small bowel had twisted, totally obstructed, part of it would be diseased now with no oxygen and would need to be removed, too. I was already throwing up (too much information to look away if you’re feeling queasy – vomit from my insides, not just my empty stomach, which is just about as disgusting as things get). I had to have an NG tube in as the vomiting wouldn’t stop. The pain was ridiculous so I was off on IV morphine almost constantly.

The surgeon came back that evening despite it being his night off to do the surgery. All seemed to go okay, done laparoscopically, and without the stoma having to be moved. The bowel had twisted twice, wrapped around itself higher up; the diseased part of bowel was removed and the stoma was refashioned.

Nightmare Hospital Stay

All I can say about the hospital experience this time really was that it was a week from hell. I’ve had quite a few hellish A&E trips and hospital stays now. This time it was the works. Nightmare nurses who I’d had countless arguments with. Nurses that simply never returned. Cannulas in collapsed veins but they don’t believe you so it seeps into the tissues in your arm and leaves you with a big lump. Asking for the nurse to temporary pause trying to shove the NG tube up my nose only for her to hold my head and continue shoving it down my throat as I choked. Not being told what was going on, not being given medications correctly when I was told I couldn’t go home because my phosphate and potassium levels were dangerously low. Ringing the buzzer for an hour before anyone turned up, even though you could hear three of them in the hall right outside eating biscuits and chatting. That’s just a small snapshot.

This is all the shit, from the nightmare nurses to idiotic doctors and surgeons, that patients simply don’t need. We have to advocate for ourselves, find someone to fight in our corner, and stand our ground, but damn, they make it hard.

A vending machine that's totally empty apart from a single lonely orange at the bottom.
The ‘healthy’ vending machine with a single lonely orange for days. Could have been there a year. So unwanted & unloved.
My Weight Watchers yoghurt and the hospital spoon next to it, which is bigger than the pot itself.
Seriously, still being mean with the big spoons? Think of the kids wanting their Petit Filous. Have a heart.
My hand holding a lolly pop.
My mommy bought me a lollipop. Simple pleasures.

A Little Light & Gratitude

I am utterly grateful for the priceless nurses who were compassionate and kind and helpful, even though they were very few and far between this time. I am truly grateful to the consultant who listened to me and went beyond the lethal female surgeon to get the help I needed. I am grateful for the dedication of the surgeon who then carefully undertook my surgery.

What’s Next?

I won’t go into the emotional side of things here. I’ve been very up and down and around about life in general, having had a lot of time to think and honestly feeling, before the surgery, that I wouldn’t make it home. Needless to say, it may take me some time to catch up. I do feel awful I haven’t been able to read blogs or reply to comments and emails. I’ll do what I can. Please know that I care and that I hope everyone is as well as possible.

For now, I’m grateful to be home. I’ve got a wee catheter for two weeks, then eventually a surgical follow-up and no driving for quite some time (hallelujah for online shopping!) too. I’ve scrubbed my skin raw trying to get the hospital out of my pores, I’m in a whack load of pain, I’ve not slept for 48 hours straight despite minimal sleep all week, and nothing tastes right, not even a beloved cuppa tea yet.

I’m utterly, bone-achingly exhausted. It’ll be another long recovery for a totally unplanned spanner in the works, but hey, I’ll eek out a lesson or two to learn from it all I’m sure πŸ˜‰

Caz  β™₯



  1. February 25, 2019 / 5:02 pm

    Whoa… I got nothing. Nightmare Hospital Stays are all too prevalent. What is wrong with people??? You know I have had a few, luckily I was able to walk out on a few of them. Buh-bye! But you could have seriously died. I know the emotional wounding is worse than the pain, the ignorant nurses, surgeon, even the entire painful stay. It is what it does to your emotions that remain wounded. Time does heal emotional wounds. So let time pass… honestly, I NEVER believed this until I went through being emotionally wounded from people who were supposed to care for me while I was in a vulnerable state. Like you, Caz. Time is our friend for this one. xoxo

    • March 4, 2019 / 12:33 pm

      You’re right about the emotional wounding and time being our best bet where that’s concerned. I can tell you get what I mean and how I’m feeling on this one. Thanks for the wonderful comment, Kim Β β™₯

  2. February 25, 2019 / 5:07 pm

    I’m so sorry you had a week from hell. I hope you feel better soon. I did miss you but thought you were just taking a break.

    Have a fabulous week, my friend. β™₯

    • March 4, 2019 / 12:33 pm

      Thank you, Sandee Β β™₯Β β™₯

  3. February 25, 2019 / 5:11 pm

    Cyber hugs. It sounds an awful experience. Just so glad you are home.

    • March 4, 2019 / 12:34 pm

      I’m glad to be home, too. Thanks for the hugs – right back at you! I hope this week treats you well =]

  4. Ashley
    February 25, 2019 / 5:41 pm

    Good to hear from you – I’d been wondering how you were doing. I’m sorry it was such a nightmare, but glad that there were at least a few competent people to take care of you. I hope this surgery keeps things under control for a while, and hope you feel better soon. ❀️

    • March 4, 2019 / 12:35 pm

      Thanks very much, I really do appreciate your lovely comment Β β™₯ – I hope you’re doing okay and that the week ahead is a good one for you πŸ™‚

  5. February 25, 2019 / 5:50 pm

    Praying for you. Hoping today is a better day.

    • March 4, 2019 / 12:35 pm

      Thank you lovely Β β™₯Β 

  6. Chomeusewithachou
    February 25, 2019 / 6:37 pm

    You poor, poor thing! I am so sorry that your week was so horrific. I can’t even begin to imagine what must have been going through your head. I hope you start to feel better as soon as possible and that you manage to sleep at last. Thank goodness for the consultant doctor!!

    • March 4, 2019 / 12:36 pm

      I’m so grateful for that consultant doctor, what a lifesaver, literally! Thank you for your kindness, your lovely comment means a lot. I hope you’re doing well this week πŸ™‚

  7. February 25, 2019 / 6:39 pm

    Sounds truly awful!! Please be kind to yourself and rest even if you can’t sleep. Any chores will still be there tomorrow. Enlist all the help you can. Sending love and prayers your way!!

    • March 4, 2019 / 12:37 pm

      I’m definitely having to put off doing a lot of things, I can’t lift anything or do housework like vacuuming for at least 6 weeks now anyway (much to my frustration rather than pleasure as I hate not being able to clean)! Thank you for your lovely comment, Kathy. I hope this week treats you well Β β™₯

  8. Svet
    February 25, 2019 / 6:47 pm

    Oh, I hope you feel better soon

    • March 4, 2019 / 12:38 pm

      Thank you, Svet. I hope you have a good week πŸ™‚

  9. February 25, 2019 / 7:10 pm

    Oh Caz, this is horrendous. I think there’s some serious complaining needs to be done (once you’ve recovered). Right now, you focus on YOU. Rest, take care, forget everything that doesn’t matter. Sending love and hugs.

    • March 4, 2019 / 4:11 pm

      I had been wondering whether I should say something to the hospital to flag up that surgeon at least, I hate the thought of something like this happening to someone else because I’m fairly assertive, but even I couldn’t have done much in my state without that other consultant stepping in. Thank you so much for your kindness & lovely comment! I hope you have a good week xx

  10. Jeanne Foguth
    February 25, 2019 / 7:16 pm

    No one should need to endure what you did! Praying that you heal quickly and pain-free.

    • March 4, 2019 / 4:11 pm

      Thank you, Jeanne, I appreciate that. I hope you’re keeping as well as possible πŸ™‚

  11. February 25, 2019 / 7:17 pm

    As everyone else has already stated, I am so sorry you had to go through this, and it had such a devastating physical AND emotional impact on you…I hope you can rest and find solace in the positive thoughts coming from all of your social media friends!

    • March 4, 2019 / 4:13 pm

      I’m in awe at the compassion in the blogging world & I’m grateful from the bottom of my heart for all the awesome guys & gals on here. Thank you so much for the lovely comment, John. I’ll be trying to rest up & keep my spirits up by reading your insane finds on your blog! πŸ™‚

  12. February 25, 2019 / 7:17 pm

    Hope that female surgeon got hauled across the coals. Hope all your traumas find equilibrium.

    • March 4, 2019 / 4:14 pm

      I do hope something is done where she’s concerned, but I doubt it. I feel I should raise it with the hospital as I hate the thought of something like this happening to someone else who doesn’t have such a keen consultant to step in. Thank you, Cathy. I hope you’re well and having a good week πŸ™‚

  13. February 25, 2019 / 7:27 pm

    That sounds just awful you poor thing. Apart from having a twisted obstructed small bowel which is hell on Earth, to have to endure dodgy surgeon and horrible nurses, sounds like the worst nightmare Caz and pretty frightening to read your story.
    Wishing you a speedy recovery and some deep healing sleep xx

    • March 4, 2019 / 4:26 pm

      I can safely say it was a nightmare week all-round, you’re right! It’s lovely to see you here again, I’ve missed you since Christmas. I don’t suppose you have any plans to return to blogging in any way..? I hope you’ve been keeping as well as possible.. Sending hugs xxxx

  14. February 25, 2019 / 7:48 pm

    What a nightmare. I feel sorry for people that are unable to advocate for themselves. The Medical field would kill them. As you know all too well, you have to speak up because doctors don’t know everything. You are in my heart. Get better soon.

    • March 4, 2019 / 4:28 pm

      I feel awful for those who can’t advocate for themselves, too. It’s hard enough for those who are capable and assertive enough when put in that sort of position (on lots of morphine, very ill, very sick). It makes people incredibly vulnerable. Thank you for your compassion, Mary. I hope you’re well and that this week is a positive one for you =]

  15. February 25, 2019 / 8:10 pm

    I am so sorry that you had to go through all of this but am glad you were able to advocate for yourself and get the help you needed. Keeping you in my prayers. β™₯

    • March 4, 2019 / 4:30 pm

      Thank you, Ruth, I’m very glad to be home that’s for sure! I hope you’re keeping as well as possible – have a good week ahead =]

  16. February 25, 2019 / 8:16 pm

    I hope you feel better soon .Caz!!!

    • March 4, 2019 / 4:49 pm

      Thanks very much! I haven’t seen any blog posts from you lately.. are you okay? I hope you’re doing alright and that the week treats you kindly πŸ™‚

  17. February 25, 2019 / 8:44 pm

    Nobody needs this. I hope you get over it soon, and that your healing goes according to plan.

    • March 4, 2019 / 4:50 pm

      Thank you, Viola, that’s much appreciated. I hope you’re doing okay and managing some rest & recuperation today πŸ™‚

  18. February 25, 2019 / 9:00 pm

    Sending you healing hugs for a speedy recovery Caz. Take care and stay positive as you always do..

    • March 4, 2019 / 4:50 pm

      Thank you – hugs right back at you! Take care lovely and have a good week ahead πŸ™‚

  19. February 25, 2019 / 9:14 pm

    I am just so sorry you’ve had such a hideous time Caz. So grateful for the Surgeon who did care and ensured you were given life saving surgery. Sending you loads of love and hoping you will have a smooth recovery at home. Take care xx

    • March 4, 2019 / 4:51 pm

      Thank you lovely, that means a lotΒ β™₯ I’m definitely super glad to be home!
      I hope you’re doing okay & that this week is a good one for you xx

  20. February 25, 2019 / 9:32 pm

    Commiserations, Caz; no words really!
    I had a kidney stone and was in awful pain. They had me on a saline drip, which I felt was loading too fast. My legs starting ballooning. I mentioned this, during my writhings, to the attendant nurse. She did nothing; my legs kept ballooning. I said “Look, I know how big my legs are and these aren’t the size of my legs.: It took another couple of hours in misery before ‘another’ nurse took a look in horror and slowed the drip….
    The moral of the story is: Some are good, some are not. We, as you’ve written, are our only ‘true’ advocate. Whatever it takes to get the best possible care must be done. Thank goodness you are a one straight talkin’ self advocate. It’s just the way it is!!!
    Well done you… Rest, rest, rest…

    • March 4, 2019 / 4:53 pm

      Yikes, I’m sorry you’ve had the experience of those who don’t listen, too. It’s awful, we’re very vulnerable in hospital & reliant on those good nurses and doctors to come to our aid when we need them.
      Thank you for the great comment & your kind words. I hope you have a lovely week, Carolyn Β β™₯

  21. February 25, 2019 / 10:05 pm

    How horrible of an experience you have had, which you shouldn’t have had. It’s bad enough the pain you were going through and not feeling well with that, let alone all that crap. It sounds like a long road of recovery ahead of you, so do be kind to yourself, because you deserve that.

    • March 4, 2019 / 4:54 pm

      It’s a pain in the bum to have all the extra hassle in hospital when you’re not well, it’s just a shame that I’m sadly not alone in such experiences with awful surgeons and nightmare nurses. Thank you for the lovely comment, Liz. I hope you’re keeping as well as possible Β β™₯

  22. Wendy
    February 25, 2019 / 10:49 pm

    Oh, my dear friend Caz. It is dumbfounding to me how much pain, surgery, and bad diagnoses that you’ve endured. The fact that you have written at all recently, after all you’ve been through, is mind blowing to me, given the condition you are in. Please be especially kind to yourself now. If you cannot write or do much of anything else, for a month or more, it is totally acceptable and understandable.

    I had a full blockage of my small intestines eons ago. The people in the e.r. sent me home. My own doctor said it was a Crohn’s flare. Finally, another G.I. doc, looked at my upper G.I., and figured things out. I was rushed into emergency surgery, and thankfully had no necrotic tissue.

    It was the most painful health issue that I’ve ever dealt with. My heart goes out to you. And it’s not right that you are still in so much pain. The docs need to give you appropriate meds.

    Love and Hugs, Wendy xoxo

    • March 4, 2019 / 5:16 pm

      I do get that guilt feeling when I’m not keeping up with other blogs or writing on here, I know it sounds silly. I am trying to rest up but also keep myself fairly busy and distracted when I’m able to, whether that’s on here or a book or Netflix (what a lifesaver that is!) I’m sorry you had such an awful experienced with a blocked small bowel, that sounds awful and to have the doc dismiss it like that is so very dangerous. Did they have to remove any bowel when they resolved it? I truly hope nothing like that ever happens to you again. Enduring that once is one time too many I think.
      Thank you so much for such a wonderful comment, Wendy Β β™₯

  23. February 25, 2019 / 11:19 pm

    Glad you made it home. Sounds like it was iffy there. It always amazes me the difference in care that can be received at the same location. I always wonder why some people are in the profession they are in . . . . I mean, sometimes it is obvious they just don’t care so why are they in a job that requires them to care? So annoying!

    I hope you are feeling better soon!

    • March 4, 2019 / 5:17 pm

      Definitely iffy! You’re right, there’s such variation in the care people receive and the types of surgeons and nurses out there, even within the same hospital. I do wonder why some go into certain professions, like teachers who dislike children, it’s very odd. Thank you, Terre Β β™₯ I hope you’re well and that this week is a good one πŸ™‚

  24. February 25, 2019 / 11:44 pm

    Dont apologise just get yourself well. Take care x

    • March 4, 2019 / 5:18 pm

      Will do! Thanks, Jo. I hope you’re doing well πŸ™‚

  25. February 25, 2019 / 11:58 pm

    So sorry you had to endure this terrible hospital treatment. No person should have to endure this.
    And after all this- you stuill came out with your sense of huor intact (online shopping – lol).
    Take care of you. Wishing you a speedy and painless recovery.

    • March 4, 2019 / 5:19 pm

      Not sure I’d survive any of this without a sense of humour! Thanks for the kindness & lovely comment. I hope you have a good week ahead! πŸ™‚

  26. February 26, 2019 / 12:03 am

    thank goodness for your grit, dear Caz – whew! – NIGHTMARE INDEED – glad you’re home & sending you my very very best. hang in there – telling, not asking

    • March 4, 2019 / 5:20 pm

      Is that an order, da-AL? Hahah that made me chuckle – I will definitely hang in there & get enough rest. Thank you for your kindness. I hope you’re well and that you have a good week Β β™₯

  27. February 26, 2019 / 1:33 am

    Ho-ly…WOW! You had a rough ride. When you’re *that* sick and in *that* much pain, trying to wrangle the medical staff to do their friggin’ jobs shouldn’t be your responsibility – the person who’s expending all of her energy and then some to stay alive! I’ve dealt with my fair share of medical negligence, too. It’s enough to cause PTSD. I hope it all heals well, quickly and that your follow-ups go smoothly.

    As for the the lackadaisical a-holes who put you through all of that, give me names, and I’ll collect reparations…or kneecaps. Your choice (though I’m not sure what use you have for a bag of patellas). πŸ˜‰

    • March 5, 2019 / 5:46 pm

      You’re right, it should be the patient’s responsibility.. sadly this sort of thing happens far too often. I think some people do get some form of PTSD through these experiences. I’d certainly say they’re traumatic. ‘Lackadaisical a-holes’ – I love that! I may have to take you up on the offer to collect reparations and/or kneecaps! πŸ˜‰
      Hahah thank you for the giggles & the lovely comment, Kara!
      I hope you’re well and that this week treats you kindly Β β™₯

  28. February 26, 2019 / 4:54 am

    OMG I am so sorry that all that happened to you. I wouldn’t want that idiot surgeon touching me either and to think she was going to send you home!…to die! Wow!
    I am glad your first surgeon was contacted and was able to do the surgery for you. I really feel for what you’re going through even though I have no idea how you really feel or the pain you go through.
    Hang in there woman!
    You’re a fighter even when you feel like a weakling.

    • March 4, 2019 / 5:21 pm

      It’s quite shocking to think about that surgeon now that I’m clear-headed and away from the situation.
      Thank you for your lovely comment, it means a lot to me. I hope you’re well and that you have a good week ahead πŸ™‚

  29. February 26, 2019 / 11:12 am

    What a terrible experience! No one should have to go through that. Seems no matter what the profession bad eggs get through. The good thing is there are a few compassionate competent health care workers that really care. May you get one of them if you have to go back (God Forbid) I hope you are as comfortable as possible while at home recuperating. Wishing you the best. Get Wel Soon Caz.

    • March 4, 2019 / 5:22 pm

      You’re right, bad eggs to slip under the radar, but it still baffles me how so many are in such professions when they’re either totally incompetent or seem to dislike people in general! Still, it makes me all the more grateful for the good surgeons and nurses out there. Thank you for your kindness, Darnell, you’re a good soul. I hope this week treats you well πŸ™‚

  30. February 26, 2019 / 3:09 pm

    Sometimes the cure is worse than the disease. Maybe this time the surgeon was worse than the disease. I thankful that things will be okay but sad that you had to go through this.

    • March 4, 2019 / 5:56 pm

      Hah yes, the surgeon was worse than the disease. Thank you, George, I appreciate you taking the time to comment. I hope you’re keeping as well as possible πŸ™‚

  31. February 26, 2019 / 5:36 pm

    Yikes lady, that sounds terrible! Glad you’re doing better despite all the obstacles to your healing.

    • March 4, 2019 / 5:57 pm

      Thanks, Jay – I’m getting there, just very glad to be home! Have a great week πŸ™‚

  32. February 27, 2019 / 3:46 am

    Oh, Caz, this is awful! Big (but gentle) hugs to you!

    I had been thinking about you lately and was wondering if I somehow missed a post or two of yours since you are so consistent about posting regularly and I hadn’t see any new posts. I’m so sorry you had to go through all of that, especially with incompetent doctors and unhelpful nurses. What a traumatic experience to be so sick, knowing you could die if you can’t find someone to just listen.

    I hope you will take some time to just heal, both physically and emotionally. God knows you deserve it.

    • March 4, 2019 / 5:58 pm

      I wanted to let people know why I’d dropped off the face of the planet, I feel guilty when I’m behind on blogs but I’m so grateful for people like you who care, so thank you so much for your lovely comment. Gentle hugs right back at you! I hope you’re keeping well and that this week is a good one for you Β β™₯ xx

  33. February 27, 2019 / 12:47 pm

    I’m a bit behind with my reading, but I’m so sorry to hear this. That sounds absolutely terrifying and is a really important example of why we should advocate for ourselves. So many people don’t, and sometimes the so-called professionals are just plain wrong. Scarily so.
    You’ve been through a lot. Be gentle with yourself and don’t try to do all the things at once.
    Sending hugs, Kirsty

    • March 4, 2019 / 7:45 pm

      You’re right, we do need to advocate for ourselves. The frustrating thing in this case is that I’m quite assertive & I kept fighting, but I don’t know what would have happened it if weren’t for that other consultant because I was so sick & not too ‘with it’ on morphine, that I could only do so much. It’s very scary indeed as patients are incredibly vulnerable in hospital. Thank you for your kindness & the hugs lovely. I hope you’re doing okay, & I’ve emailed you back (sorry it’s so late)! πŸ™‚

  34. February 27, 2019 / 4:14 pm

    My dear Caz, I thought you were taking a much needed break, rI’m so sorry it was forced upon you and I’m so sorry I wasnt aware more was wrong. This was truly a Nightmare stay from hell. There are way too many of these type of stays. I hear so many horor stories. How can we advocate when no one listens? If no one is there to chase down a doctor or nurse, to raise total hell, how can we as the sick patient get those we have to entrust our lives with to listen and not play games with our lives….our souls.
    I’m so sorry this happened to you.
    My heart simply bleeds reading it.
    Much love to you my dear friend.
    I wish I was there to help

    • March 4, 2019 / 7:47 pm

      No not at all, Wendy, you weren’t to know. I wanted to give a quick update as soon as I could as I don’t like suddenly disappearing and I feel awful slipping behind on keeping up with how everyone’s doing and reading other blogs. You’re right, there are far too many people who’ve experienced similar horror stories of stays in hospital and dealings with surgeons and nurses like this. Patients are very vulnerable in hospital and when you’re so poorly, no matter how assertive you are, it can be very hard to advocate for yourself and can the help you need. You have helped greatly by caring – I truly do appreciate your kindness and the lovely comment Β β™₯ I hope you’re doing okay & that this is a good week for you xxxx

  35. February 27, 2019 / 6:57 pm

    Sending bear hugs your way…..
    Along with lotsa love, light and glitter.
    I’m glad you’re here…. you brighten the world.

    • March 4, 2019 / 7:48 pm

      I do like a bit of glitter! Thanks for your kindness & the bear hugs – right back at you! Β β™₯ I hope you’re doing okay and that the week treats you well lovely xx

  36. February 27, 2019 / 7:13 pm

    First off, sorry for you having to go through that. Since it’s my first time to visit you, I have some reading to do on you to figur out what a & e means, where you live, and your medical condition. Thank you for visiting my blog, maybe with all your down time, you will have time to read a bunch of blogs. You obviously have a ton of friends and well wishers. 😊 Get better soon, and try to forget your NIGHTMARE of a hospital visit!

    • March 4, 2019 / 7:49 pm

      Thank you for visiting and taking the time to comment, I really do appreciate your lovely comment! I live in the UK and A&E is ‘accident and emergency’, basically the emergency department in hospital. I hope you’re well & that you have a lovely week ahead xx

  37. February 28, 2019 / 7:15 pm

    What a harrowing experience! I’m in tears for you, wishing you a good recovery. And, sending you lots of virtual hugs. β™₯β™₯

    • March 4, 2019 / 7:50 pm

      Thank you so much Kymber, that’s very kind of you and I really appreciate your kind comment – hugs to you too Β β™₯ I hope you’re doing okay and that the week is going well for you so far xx

  38. Benn Bell
    February 28, 2019 / 10:08 pm

    Wow! Sounds like a real nightmare! Glad you are home and on the mend Caz! My very best wishes to you as always!

    • March 4, 2019 / 7:51 pm

      I’m glad to be home too, very, very glad! Thanks for the kind wishes, Benn – I hope you’re doing as well as possible this week! =]

  39. March 1, 2019 / 6:11 am

    Caz, I am so sorry your have been through so much, and it never helps to have people who don’t believe you. And when they are the one we are dependent on to save our lives! I want to scream for you. I praise God for anyone who helped you, and for any blessings He sent your way. PS… Did you eat the orange?? πŸ˜‰
    Maybe I can try to send a smile your way?? I hope so. Praying for you!!!
    I have nominated you for the My 7 Favorite Things Tag.
    Please see this is meant to be a blessing, not a burden. God loves you!

    • March 1, 2019 / 6:25 pm

      Thank you so much, Gail, your kindness truly means a lot. And thank you very much for the sweet nomination! Β β™₯
      PS. Didn’t eat the orange. Not sure how long he’d been sat there, but he’s probably still there now looking just as lonely.
      Have a lovely weekend xxxx

  40. March 1, 2019 / 8:26 am

    You’re definitely not being melodramatic, Caz – that sounds like a truly horrific week! It’s just as well you know to fight your corner, and that there was at least one competent surgeon around. Rest up, and hope you’re feeling better (or at least not so bad) soon ❀️

    • March 1, 2019 / 5:45 pm

      Thank you very much Rosie, your kindness means a lot. I hope you’re doing okay, too – Have yourself a lovely weekend xx

  41. Lisa Keeble
    March 1, 2019 / 10:36 am

    Oh my God Caz, I’m so sorry that you’ve been through such an awful time of it! Sending virtual hugs your way xxxx

    • March 1, 2019 / 5:43 pm

      That’s very kind – hugs received with thanks! Have a lovely weekend Lisa πŸ™‚

  42. March 1, 2019 / 5:51 pm

    we thank you and we all owe them !!! Wish you and your family a nice, relaxing, relaxed time on the weekend .. ((everything that has come .. must also go)) and that you too, great ,,, Thanks for the great fighting spirit and her story has me changed, you have many people with your openness Wake up by many thanks !! and everything imaginable !!!!! do it well, see you then !!!!

    • March 4, 2019 / 7:52 pm

      Thank you so much – your kind words have put a smile on my face. Take good care of yourself too & have a great week! πŸ™‚

  43. Quirky Girl
    March 1, 2019 / 11:45 pm

    Holy moly, it s0unds like you’ve had one hell of a week. I hope you recover well and start to feel better soon. <3

    • March 4, 2019 / 7:52 pm

      Holy moly – that’s an expression that’s not used enough! Thanks lovely – I hope you and the furball baby are keeping well and having a good week πŸ™‚

  44. March 2, 2019 / 2:41 am

    I’m just catching up on my favorite blogs and was so sad to read all you have been through. I’m going to pray for you right after I finish this comment. What a terrible week and I cannot imagine the emotional turmoil that is accompanying the ongoing physical challenges. God bless you with a better weekend!

    • March 2, 2019 / 6:14 pm

      Thank you so much for your lovely comment, it means a lot. I hope you’re doing okay and that the weekend treats you well Β β™₯

  45. March 2, 2019 / 3:19 am

    I hope you feel better soon! Healing prayers!❀️

    • March 2, 2019 / 5:32 pm

      Thank you lovely! I hope you’re having a good weekend πŸ™‚

  46. March 2, 2019 / 6:02 am

    Praying for you Caz!!! I am sorry you had to go through that and I am glad to see that you are home. HUGS!! πŸ€—πŸ€—πŸ€—

    • March 2, 2019 / 5:19 pm

      Thank you Christy, that’s really kind of you! Hugs back at you – I hope you’re doing well and that you have a lovely weekend πŸ™‚

    • March 4, 2019 / 7:54 pm

      Definitely infuriating. It’s hard to put into words how annoying it all was at the time, and it’s odd to think now that I’m home and clear-headed just how bad things were. I hope you’re keeping well lovely xx

  47. March 2, 2019 / 5:04 pm

    Oh, Caz, this sounds terrible.

    Nightmare nurses to idiotic doctors and surgeons,…I remember. I want to forget. Damn idiots.

    How are you feeling now?

    • March 4, 2019 / 7:55 pm

      Ugh yes, I’m trying to distract myself because thinking just how awful it was now that I’m home and clear-headed is so odd, so infuriating. I’m doing a little better thank you (and a heck of a lot better than I was in the hospital, that’s for sure). It’s just very slow-going. Thank you for the lovely comment. How are you doing? I hope this week treats you well πŸ™‚

  48. March 2, 2019 / 6:48 pm

    OMG! I ve been off for sometime so I didn’t read blogs! Hope you skyrocket recovery and I’m deeply sorry for the pain all the pain you ve gone through! Please be strong, in my priers πŸ’•πŸ™πŸ’

    • March 5, 2019 / 7:55 am

      That’s very kind of you, thank you lovely Β β™₯ I hope you’re well and that you have a good week πŸ™‚

  49. March 2, 2019 / 6:57 pm

    That’s awful, I’m sorry you had to go through that.
    I hope you feel better soon!! πŸ™‚ xx

    • March 5, 2019 / 7:56 am

      Thanks lovely! Β β™₯ I hope you’re doing as well as possible and that this week treats you kindly xx

  50. March 3, 2019 / 8:09 am

    Wow! That one doctor sounded totally whacked — as if she didn’t even read the charts. Luckily you saw that first surgeon first who sounded like he knew what he was doing, turned out to be right and that he did the surgery. And that the third consultant advocted for you. I hope now that you are out of there, you are healing and are able to relax more.

    • March 4, 2019 / 4:26 pm

      ‘Totally whacked’, yep, that’s about right! Thank you, Mary, for the lovely comment. I hope this week is a good one for you =]

  51. March 3, 2019 / 9:40 pm

    Charlee: “Wow, that sounds like a beyond awful week!”
    Chaplin: “We are sending lots of purrs that you feel better and never have another week like that ever again!”

    • March 5, 2019 / 7:57 am

      Aw heheh that’s very sweet, thanks! Β β™₯
      I hope you’re well & having a good week πŸ™‚

  52. March 3, 2019 / 10:20 pm

    oh my gosh, there’s me moaning about my leg and you being so lovely and supportive when you’ve been through all this. Nightmare week for you, the NHS does its best but to do that the staff need to be knowledgeable and compassionate. The patient should come before the procedure, I can’t imagine the trauma caused by inadequate care. Sending you kind and reassuring hugs, message me anytime you want to chat/offload xx
    You’ve been through a lot and it’ll take a while to get back on an even keel, keep strong <3

    • March 5, 2019 / 8:04 am

      Not at all, Karen, you can’t compare things like that as we each have our own struggles. For what it’s worth, I find you very inspiring to keep going and pushing yourself the way you do, I think you’re making huge improvements & should be really proud! Thank you for the lovely comment & your kindness, it means a lot Β β™₯ I hope this is a good week for you xx

  53. March 4, 2019 / 12:43 pm

    OMG! You have been on a complete roller coaster ride. Wishing you a speedy recovery and a healthy journey ahead. Take care xx

    • March 4, 2019 / 5:17 pm

      Thank you very much, that’s much appreciated Β β™₯

  54. March 4, 2019 / 4:16 pm

    I am so so sorry to read all of this. I actually feel upset for you – what a scary stay in hospital. I hope the amount of comments on here show how many people are thinking about you and hoping for a better day for you xx

    • March 5, 2019 / 8:05 am

      I’m in awe by the comment, each and every one means the world to me. Thank you for yours, too, Rachel Β β™₯ I hope you’re doing okay and that the migraines quieten down asap, they’re utterly rotten so I do empathise. xx

  55. Alison
    March 6, 2019 / 11:35 pm

    Sending lots of (gentle) hugs. πŸ’œπŸ’œ

    • March 7, 2019 / 6:23 pm

      Hugs received with thanks, Alison. Back at you – I hope you manage a little more rest tonight for your body & brain, it sounds like you’ve been doing a lot of deep thinking, especially after that documentary.xx

    • March 11, 2019 / 6:01 pm

      Thank you lovely, I appreciate that πŸ™‚
      Have a good week ahead xx

  56. March 16, 2019 / 9:18 am

    Hope you’re feeling better now

    • March 16, 2019 / 9:47 am

      I am doing a little better, thank you very much for your kind comment. I hope you’re well πŸ™‚

  57. March 18, 2019 / 11:33 pm

    My heart goes out to you. I have been fortunate with my stoma and ostomy. I had one blockage 18 years ago the year after my first surgery. where I got the ostomy. I do hear you about ghaslty hospital stays. Last year I had a gall bladder attack and they out me into the palliative care ward!! Thanks for sharing your story and best wishes to you for good health.

    • March 19, 2019 / 3:51 pm

      I’m glad you’ve not had too many recent problems with your stoma & ostomy, that’s really good to hear. But it sounds like you’ve had enough to deal with where other issues are concerned; the gall bladder issue sounds awful, and scary to be sent to the palliative care ward, are you fully recovered from that? Thank you so much for stopping by & your lovely comment, Anne xx

  58. March 21, 2019 / 4:29 pm

    Hi Caz,

    I could write about how sorry I am for you or how you need to hang in there or go ahead and give the people who were mean to you a good dose of bitter medicine, but instead I wanted to say something different. When I was reading this post, the shadow of a hummingbird appeared upon my white curtains. The little, dark outline was just above the photo of your sad eyes. I could make out the flutter of the wings and the bird was trying to get through the window screen and I could hear the wings beating. A hummingbird lifetime passed, a good 20 seconds, and then it was gone. I decided, in my own way, that the hummingbird was trying to get to your photo. She wanted to be with you and this whole event was a very good sign, in fact, it meant that you were going to get better soon. Please know that things can just as easily get better as worse, it is only that for those of us who are sick, it is difficult to imagine a life without pain. So please be the hummingbird, let her settle down into who you are. All of these things I know. Thanks. Duke

    • April 5, 2019 / 2:52 pm

      What an incredibly lovely comment, thank you so much, Duke. I could picture that little hummingbird. You are very kind, thank you, I truly appreciate you taking the time to write this. I hope this weekend treats you kindly Β β™₯

  59. April 4, 2019 / 10:57 am

    Hi Caz,
    Well I can agree with you about the week from hell. Unreal. I couldn’t help but notice the humor that you injected into the narrative and you definitely have a “spunky” little spirit within you, which is a good thing! I hope that things have settled down by now. I love the way that you write. I noted that you had visited my blog and had liked a couple of my posts, thank you for that. You’ve been dealt some difficult cards but your disposition appears to be more than a match, if not more. I sincerely wish you well and just wanted to let you know that considering what you’ve gone through, it’s pretty hard not to admire your tenacity. God bless.

    • April 5, 2019 / 2:53 pm

      A ‘spunky’ spirit, I love that! It’s not always easy to hold onto it, but it definitely helps to keep that fire alive and a sense of humour to hand. Thank you so very much for such a kind, compassionate comment. It’s much appreciated. Thank you again and I hope you have a blessed, peaceful weekend ahead, Bruce Β β™₯

  60. April 5, 2019 / 6:36 am

    Caz, I am sending you so much love. Let me know if there’s anything that I can do. <3 I have a beautiful meditation from one of my own spiritual mentors on connecting with your essence of love—I find it so reassuring, thought you may too. Let me know if you want me to forward to you! Either way, a big hug to you. (And I realize this post is a bit of time ago, so hopefully you are healing beautifully.)


    • April 5, 2019 / 2:50 pm

      That is incredibly kind of you, Deborah. Thank you so much. If you’re able to send me the meditation or a link to it, that would be lovely, but don’t go to any extra hassle. You have such a kind heart, thank you. I hope you have a relaxing weekend ahead Β β™₯

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