Birthday – Thanks Bunches For The Wishes!
Firstly, thank you so much for the birthday wishes and for sharing your thoughts on birthdays. I’m heartened by each and every like and comment. I’m a little saddened that so many have felt that same bittersweet edge to birthdays, the pressure of social expectations and the sombre mood that can accompany them.
I don’t have photos of me from my birthday as my downcast expression may have broken the camera, so here’s a pic of my cat Virgil, making himself comfy and hiding from the world because he didn’t want to be outside in the rain.
Surprise A&E Visit
Secondly, I apologise for the delay. I had partly written this and intended on finishing and posting it on Monday. Then life got in the way. Sunday night was awful; I didn’t sleep, was in hell of a lot of pain, and stoma decided to stop working. Gave it until late Monday morning and then it was into A&E. Things still haven’t fully resolved, nor was a particularly good reason given for why it had happened. The surgeon on call doing rounds was actually the one who did my stoma revision surgery 5 weeks ago. He wanted to go for the ‘hopefully just a hiccup as your body’s still swollen and recovering from surgery’ explanation.
There were some ‘nightmare nurses’, as expected, but a couple of lovely ones too. I got to know a few great ladies in the ward I was in. For the nurse who told me I had to have Oramorph and that she knew best, despite me saying it doesn’t help and only makes me sick, I managed to get her back; violently throwing up for an hour just as she was about to finish her shift!
Why do they give such big spoons when you ask for a tea spoon? The spoons are huuuuge. It didn’t fit in my little yoghurt pot, but luckily I had my own tea spoon for that. When it came to the mini ice-cream (which are actually quite nice) it barely fit in that tub either, let alone my mouth. It’s cruel. And just plain odd.
Now I just want things ‘back to normal’ as I’m very uncomfortable, albeit not in such pain, and things still aren’t right. I’m also back to feeling like a ticking time bomb where this little munchkin of a stoma could have a tantrum at any moment.
Migraine Poll Results
There has also been some great feedback on the headaches, migraines and clusters post. I’m also sorry so many of you struggle with these, both infrequently and regularly. At the time of writing, the polls show that 32% of you get regular migraines, and a 26% occasional ones.
Even more of you get regular headaches at 55%, which is quite worrying. While 64% don’t experience cluster headaches, 23% do.
So, how do people deal with them? Just under 20% use prescription medications, 33% over the counter meds, and smaller proportions use lifestyle modifications and other options, or use no treatment at all.
What I found fascinating are the ‘other options’ for treatments that have come up. Cannabis is one, though I’m not sure whether this refers to the drug in its usual state or CBD oil/vaping. Cannabis is showing a lot of positive outcomes for a lot of people with chronic illness, headaches and migraines included. Then there’s herbal teas and tinctures, the newer treatment gammaCore (not currently available for UK trial participants) and oxygen. Oxygen is one that has come up for cluster headaches, so if you suffer with those then this form of treatment is one you may wish to discuss with your care provider.
It should also be emphasised that if you experience new headaches/migraines/clusters, or ongoing episodes that have not been diagnosed or investigated, that you should seek an expert opinion and speak to your GP about your symptoms. There are a variety of causes behind such issues, though in many cases an absolute cause is sadly never defined. Still, you should have them checked out and get the support of a professional if treatment is needed, don’t suffer in silence.
Yet again, I’m falling behind. The to-do lists on Monday are still there and growing since being in hospital, and still feeling unwell now means it’ll be a slow climb back to getting on track. I’m sorry I’m not up to date on blog reading, emails or responding to comments, but I will catch up eventually. Please know that comments left on the blog or on the Facebook page are valued and hugely appreciated. I’ve got two GP appointments Friday as well, for B12 and then spirometry testing for possible asthma. Right now I want to crawl up, watch Netflix and hide away from the world for a bit. Maybe on the weekend… 🙂
How has your week been going? I do hope you’re all as well as possible. Remember to take time out to look after yourselves. Sending my love and thank you for reading.