Stoma Surgery Success But A Hospital Experience I Never Want Again

 

Firstly, thank you so much for the wonderful comments and kind wishes – these have meant so much to me, I can’t tell you just how grateful I am. These have been from those in the blogging world, and also ladies in a group I know online (they know who they are).  Also a shout out to Elaine for sending me some of her wonderful digital art to cheer me up. Thank you 

The stoma surgery seemed to go well. This was to ‘refashion’ or ‘reform’ the stoma for my ileostomy. The surgeon said the small bowel was tight and angled sharply so this was straightened to help on a day-to-day basis, and this will hopefully prevent the kinking and twisting of the bowel that’s led me to A&E before. The stoma has also been brought out a little more as it was retracting; this should help with the bags and my skin, so all around the surgery should be of benefit. While it doesn’t help with any of my other problems, and this is something I found disheartening at the beginning to have to go through more surgery and to know I wouldn’t come out feeling heaps better in terms of fibromyalgia, the other possible surgery needed, migraines etc, I‘m instead starting to appreciate the good it can and will do instead of focusing on what it can’t help.

Sadly, the whole experience at the hospital from start to finish was awful.

Long wait to go in… Countless times I nearly bolted!

Don’t like ‘selfies’ but felt I should have something to share with you all.

From a misprinted operation list at the start, meaning a 7 hour wait when I was told I’d be first in, to ‘losing’ my bag and inhalers after the op. Then there were nightmare nurses, and a lot of them, who didn’t listen and didn’t believe me on matters from pain relief (telling me no IV morphine because they wouldn’t look on the surgeon’s notes) and my chest (saying it was probably anxiety and that nobody, apparently in a hospital full of doctors, would be able to help, ignoring my issues recently with breathing and recurrent chest infections) to needing to wee. Nurses said I didn’t really need to wee, then eventually did a bladder scan, before 2 nurses spent nearly an hour trying to catheterise, which was more painful and humiliating than I wish to think about. They eventually got in a doctor who actually knew what he was doing, and a litre of wee was recorded, so it’s no wonder I was in more pain!

There was no bed on the ward so I was in recovery or a corridor at other points overnight and if it weren’t for two angel nurses and one student nurse, I don’t know whether I would have got out of there in one piece. I was a crying, horrible mess because that’s what morphine does to me but trying to fight my corner with nurses who didn’t seem aligned to the caring profession in the slightest was difficult.

About half an hour after I was a huge crying, wailing mess.

I was told from the beginning “it’s very busy here so we’ll have you out as soon as possible” and for it to be repeated several times made me feel more than unwelcome. With stoma surgery, you should be kept monitored well to ensure the stoma works adequately with food and drink, so turfing out so quickly was a little off-putting to say the least. Another doctor raised the point that I should perhaps stay, but I said it was fine. I’d had enough. I got a taxi home and let them have whatever bed would be available for the next patient.

I was told all paperwork and medications were ready to I could leave, only to be told it would take 2 to 3 hours for the pharmacy to get it ready. Maybe they make it from scratch down there. Who knows. I left without it and spoke to my GP on the phone the next day who prescribed proper pain killers plus antibiotics and steroids for my chest. It’s not my first rodeo so I’m looking after myself at home.

I had to come home with a catheter for a week. I now have two bags, including the temporary wee bag.  Honestly, I couldn’t look any cooler if I tried!

Looks can be deceiving if you don’t ‘look ill’.

I didn’t sleep at all last night and moving around is a bit tricky, and pain is quite relentless. There’s a big difference in recovering in hospital to recovering at home, the latter where you’re more mobile (probably a good thing) because you have to get your own drinks and food and such, but it’s all too easy to find yourself feeling you need to do things, to get restless despite being exhausted. Pain and lack of sleep are, I’m sure, going to win in the end.

This hospital visit was not an experience I wish to repeat ever again. Of course, I’ve experienced plenty in the way of nightmare nurses and bad experiences in hospital before, either after surgery or during A&E trips, but this was just a little too much when throwing in the running and state of things at the hospital in general. It feels quite traumatic, even thinking back through everything that happened.

I will gradually try to catch up a bit on other blogs and emails, so I’m sorry for the delay. Right now, I feel exhausted and I’m not sure whether much of this post makes any sense, so I’ll keep my fingers crossed it’s half way to understandable! I do hope everyone is as well as possible – Have a good rest of the week!

Caz 

 




Follow:
Share:

92 Comments

  1. July 12, 2018 / 5:06 pm

    Just take care of yourself and get well. I’m sorry you had to wait so long. That always makes me very antsy.

    Big healing hug. ♥

    • July 14, 2018 / 3:44 am

      I know, right? Waiting can be the hardest part, especially if you add anxiety to the mix. Thank you for the comment – Have a lovely weekend 🙂
      x

      • July 16, 2018 / 5:21 pm

        Trust in the life of God well in the heart and create, speak the thy self must have your soul tremendously strong many against all-visit to your organ who did not seek (sickness) you can make it safe!!!!!! Head up and I’ll pray before you!!!

        • July 16, 2018 / 9:49 pm

          That is very kind, and very powerful – thank you 🙂

  2. July 12, 2018 / 5:16 pm

    It’s such a shame that hospital care as changed so much. When I was in hospital in 2014 it was terrible then. I don’t blame the nurses because it frustrates them that they can’t offer the type of care they would like to give. Things need to change quickly in the NHS. I am pleased you’re home because you’re in the best place. 🌹

    • July 14, 2018 / 3:49 am

      Things definitely need to change, and it’s a shame that too many people have such negative experiences in hospital when they’re the most vulnerable. Thank you for the comment lovely – Have a good weekend ahead xx

  3. July 12, 2018 / 5:18 pm

    I am glad that the surgery itself seems to be a success, but being in your position of surgery and let’s call it what it is, ignorant doctors and nursing staff I am angry FOR you. Please do not over do it. Allow yourself ONE thing “responsible thing” if you must, and be proud that you accomplished it. I hope you feel better soon!

    • July 14, 2018 / 3:50 am

      Thank you – I needed to read that! I’m not sleeping much at all since coming home, and it’s now 5am and I haven’t slept all night. Need to try to ‘turn off’ my brain a little. You’re right, there’s no getting around the fact that some staff are just ignorant and it’s awful because patients are in such a vulnerable position. Thank you lovely – Have a good weekend xx

  4. July 12, 2018 / 5:20 pm

    I am sorry you had such a horrible experience. I hope your recovery goes well. ♥

    • July 14, 2018 / 3:51 am

      Thank you, Ruth! I hope you’re doing okay – Have a good weekend =]

  5. July 12, 2018 / 5:41 pm

    This was painful to even read, my dear dear friend. Glad to hear you’re home and safe, am praying you’ll get thru’ this and get so well you’ll be surprised. Sending you a big old hug, may you heal and get strong. I know these are just words, but they are prayers too. Much love

    • July 14, 2018 / 3:55 am

      That is incredibly kind of you, thank you so much  ♥
      I hope you are doing well – Please take care and have a good weekend xx

  6. July 12, 2018 / 5:43 pm

    I’m so sorry that your time in hospital was so traumatic. At least, though, the surgery was a success – and it’s clear from your post that you’ve managed to keep your sense of humour throughout the whole gruelling experience, which I’m sure will help you as your body heals. Make sure to get plenty of rest – and above all, be kind to yourself. Things can and will get better.

    • July 14, 2018 / 3:56 am

      Without trying to make light of things and find the funny side, I don’t know where I’d be! I guess a lot of us try to do that, and holding onto humour is a great relief from the annoyances of every day and the darker times in life. Thank you so much for the lovely comment, Liz – Have a great weekend  ♥

  7. July 12, 2018 / 6:18 pm

    Oh my dear that sounds horrific. I’m so sorry you had to go through that. It’s completely unacceptable. Yet, all too common, eh?
    Slow down, do.as little as you can until you have recovered from the surgery….that’s Dr Wendy’s prescription. 😘
    Wish I could be there to make it easier….if possible.
    xo wen

    • July 15, 2018 / 10:20 am

      Aw thank you, Wen – I think I need someone telling me that, ‘slow down, stop stressing, stop doing’, because it’s harder when you’re home and not in hospital. It’s awful that negative experiences like this are all too common. I will try to adhere to your prescription – thanks for the comment & I hope you’re having a good weekend =]
      xx

  8. July 12, 2018 / 7:10 pm

    So sorry you have been through all these experiences. Praying for you and hoping today is a better day. God bless you.

    • July 15, 2018 / 10:20 am

      That is very kind, thank you Melissa 💕 I hope you are doing okay and that you’re having a good weekend xx

  9. July 12, 2018 / 7:14 pm

    That’s disgraceful. They failed in their duty of care in even letting you go home never mind the other truly appalling incidents. I think a letter of complaint to the hospital is in order before they kill someone. These kind of egregious flaws in their care can’t be allowed to happen. I’m so sorry you had such a miserable time and I hope you’re better soon

    • July 15, 2018 / 10:23 am

      The pressure of having too many patients and not enough beds, too many nurses who are exhausted (or who are nightmare nurses to begin with!) and too few resources to go around really does put a lot of strain on patients too when they’re already vulnerable. You’re right. Thank you for the comment! I hope you’re doing okay lovely – Happy Sunday! 💕

  10. July 12, 2018 / 7:49 pm

    Whew! Well at least that’s over with! What an ordeal. Hospitals are the worst. Glad you are out and are on the mend. Stay strong. Don’t let the bastards grind you down and above all keep writing!
    Love, Benn

    • July 15, 2018 / 10:32 am

      Don’t let the bastards grind you down – I love that expression, a good one to live by I think! Thank you, Benn, I really appreciate it. I hope you’re doing okay and having a good weekend so far! 🙂

  11. July 12, 2018 / 7:59 pm

    Oh Caz, I’m so sorry your hospital visit was so awful. You know, I get so angry when I hear about nurses being so uncaring. I just feel like if you can’t have compassion for people when they’re going through some of the most difficult times of their lives, you don’t have any business working in that profession. I’m glad your surgery was successful and that you’re home now. Take good care of yourself so you can heal. Hugs to you sweet friend!

    • July 15, 2018 / 10:31 am

      I completely agree when it comes to the nightmare nurses; not those who are simply tired, where you can obviously forgive not being bright and breezy all the time, but those who seem to simply not care and lack compassion for another person, especially when vulnerable in hospital. Thank you so much for the lovely comment, Terri. I hope you are keeping well and having a good weekend  ♥ xx

  12. I’m so relieved to hear your procedure itself went quite well but horrified about all the problems you had at the hospital! As if the experience of surgery isn’t scary enough, to have people not believe you and be uncaring medical professionals just isn’t helpful.

    I’ve had similar experiences with nurses. One especially who didn’t believe me when I said I was struggling to breathe and then the next morning she found me barely conscious with pneumonia! That taught her!

    Take some time for yourself now and don’t rush anything. Gentle hugs x

    • July 15, 2018 / 3:18 pm

      Oh hell, that’s awful – Did you even get an apology when she realised she should have listened and believed you? I’m guessing not.. I don’t know why it seems so rampant that vulnerable patients don’t get believed in hospitals or after surgery. It’s not just upsetting and frustrating but dangerous too, as in your case! I’m sorry you had to go through that. Thank you so much for sharing and the kind wishes. Hope you’re having a good weekend so far 🙂
      xx

  13. July 12, 2018 / 8:36 pm

    Yes, I can see from what you say that the hospital treatment was not very good at all. I would label it traumatic too.
    I can imagine you being so much happier being at home, but do take care and relax, as it will all help in your recovery. X

    • July 15, 2018 / 4:29 pm

      I think trying to relax and stress less are definitely important. We could all do with adhering to those ‘prescriptions’ a little more! Thank you for the kind wishes  ♥

  14. July 12, 2018 / 8:46 pm

    I’m so pleased your surgery went well, Caz, but quite disturbed to learn of your experience with the hospital. Dear oh dear, what is the NHS coming to? Anyhow, please take good care of yourself. I hope the pain eases off and you start to feel better over the coming days. Incidentally, your post makes perfect sense. Best wishes. 😊 xx

    • July 15, 2018 / 4:29 pm

      It’s good to know the post made sense and wasn’t a load of drivel filled with gaps and errors! Thank you for the lovely comment, Paula – I hope you are keeping well and having a lovely weekend xx

  15. July 12, 2018 / 9:41 pm

    Good to know the surgery is out of the way. Sorry it was such an ordeal.

    • July 15, 2018 / 4:30 pm

      Thank you, Peggy! I’m glad that one’s out the way too. I hope you are keeping well – have a lovely week ahead =]

  16. July 12, 2018 / 9:58 pm

    Oh my goodness sweetie, I am so sorry you had such an awful experience at the hospital. I guess at least the surgery is out of the way and now you just need to focus on resting to heal. I wish there was more I could do for you, but I am sending you LOTS of good vibes and caring/loving thoughts.

    • July 15, 2018 / 4:32 pm

      That means a heck of a lot – thank you so much for the kindness! I hope you get a little more rest over the upcoming week and that stress can ease away a little as you’re going through the wringer right now too. Sending hugs…  ♥
      xx

  17. July 12, 2018 / 10:21 pm

    Am so sorry, dear Caz, but so very glad you came thru it like a champ.

    When I had breast cancer, I read that patients who live longest are those who are the most ‘difficult tempered’ — not in terms of being cruel to their caretakers but that they know what they want & won’t settle for less. I took this to heart & proceeded to learn much — that the more demanding I was, resolved in my mind that I had to have what I had to have, the more the medical folks accommodated me in any sort of way I insisted upon. This was a revelation, as I’d been raised to be a ‘nice girl,’ & that if I wasn’t ‘nice,’ then people would want to retaliate — not so at all.

    Perhaps you’ve found the same? If you haven’t tried it, I urge you to do so. All my best to your, dear!

    • July 15, 2018 / 6:44 pm

      That is such a good point in terms of being more demanding and knowing what you want without settling for less. Over the years I have become a lot more assertive and I do think that helps, to be calm and even in stating your point and clear on what you want/need. I do, however, find that goes out the window somewhat when I’ve been on morphine and I’m a crying mess (literally makes me cry without being sad, I can just sit there and tell a joke while crying, it’s odd); when you’re in pain and at such a disadvantage, it can make patients incredibly vulnerable. But yes, being more assertive is certainly important, and interesting to hear that those who are more ‘difficult tempered’ live longer. It’s wonderfully empowering and inspiring to read how you learned this and grew and took something positive from what must have been such a hard point in your life at fighting breast cancer. Thank you for sharing and the kind wishes  ♥
      xx

  18. July 12, 2018 / 10:46 pm

    Oh Caz, I’m so sorry you had such a terrible experience. At time when you feel vulnerable and need care it really saddens me to read you weren’t given it. So glad you are home. Sending lots of love xx

    • July 15, 2018 / 6:50 pm

      It’s just a shame this sort of thing isn’t a rare occurrence; I’ve had such experiences before, and I know all too many people have shared similar ones. Glad to be home & feeling more mobile! Thank you, Sam – I hope you are doing okay and that you have a good week ahead 🙂
      xx

  19. July 12, 2018 / 10:53 pm

    Sounds like you had a very rough time. Glad you’re out of there and hope you get well soon. I’d probably find a different hospital and spend my life badmouthing that one.

    • July 15, 2018 / 6:56 pm

      Hah, well that’s one way of dealing with it! 😉
      I’m glad to be back home too where it’s less stuffy and I can walk around a little. Thanks for the comment & kind wishes – Have a lovely week!

  20. July 13, 2018 / 2:28 am

    That’s terrible that they treated you that way. You really should have had privacy and not have been out in a hallway for half the night like that. I don’t know if this is a “trend” with hospitals but I’ve heard of other people having surgeries and being pushed out of their rooms to make “room” for someone else. That’s BS!

    • July 15, 2018 / 6:59 pm

      It’s not great to hear of so many problems with bed shortages. Luckily I wasn’t in a random hallway, just off the recovery room, and I was in recovery then for most of it. It’s just not where you’re supposed to be and you don’t have the support and such you’re supposed to have on the ward dedicated to tummy and stoma stuff. It’s bad there’s a shortage and people can’t get beds, and bad that when they do they’re pushed out too quickly or made to feel that they shouldn’t be there. Sad times indeed. Thanks for the comment, Alicia! I hope you have a lovely week ahead 🙂

  21. July 13, 2018 / 4:46 am

    Oh my goodness!!!!! I just want to hug you!!! What a horrible experience! You were not joking 🙁 I am glad that you at least had some people who were nice, but goodness it would have been nicer if more of the nurses were kinder!!!

    I agree I think you’re so cool! 🙂

    • July 15, 2018 / 9:23 pm

      Hahah thanks, glad there’s one other person in the universe that agrees with me in being so cool! 😉 Those odd nurses who were wonderful really made such a difference, I will be forever grateful to them. Thank you for the lovely comment – I hope you are doing okay, and have a great week ahead! xx

  22. Wendy
    July 13, 2018 / 5:33 am

    Oh Caz. I’m so sorry to hear that your experience with the hospital was hellish all the way around. Why do some individuals even become nurses, and doctors, when they refuse to listen to patients that are suffering? Reading your piece made me angry. I think you should consider writing an opinion piece about the failures of the medical system that you had to endure.

    I hope that you heal well. And that life gets better for you, soon.
    Big hug, W

    • July 15, 2018 / 9:37 pm

      I feel the same, and can’t quite figure out why some such ‘nightmare nurses’ go into the profession. Same goes for some teachers who seem to dislike both teaching & children! Thank you for the lovely comment, Wendy – I hope you’re doing okay, take care and have a good week ♥

  23. July 13, 2018 / 7:34 am

    Oh Caz, what an absolute ordeal!. Wishing the pain eases,and a qiick recovery. Thinking of you.x

    • July 15, 2018 / 9:38 pm

      Thank you, Toni! I hope you’re keeping well and that the upcoming week is a positive, restful one for you 🙂

  24. July 13, 2018 / 11:54 am

    I’m sorry it was such a bad experience. Wishing you a speedy recovery xo

    • July 15, 2018 / 9:41 pm

      I’m glad to be home and doing a little better – thank you, lovely! I hope you’re managing okay this weekend ♥

  25. July 13, 2018 / 1:06 pm

    Hi Caz,

    you looking good and I hope you are much better now.I’m sorry for your traumatic experience with nurses, but I am glad that you find some good nurses to help you on your journey.You must be strong, you must help to your body to recover with your positive thoughts . It is hard I know, but faith is when you are able to see invisible and believe in impossible !

    I wish you the best

    • July 15, 2018 / 9:42 pm

      Ben, those good nurses were absolutely amazing and I’ll be forever grateful; the bad ones really make the good ones all the more important! Thank you for the lovely, inspiring comment & kind wishes – Take good care of yourself and have a good week ahead ♥

  26. July 13, 2018 / 1:45 pm

    Glad you are home. I’m really sorry that you had such a bad experience in Hospital. It really sounds as if the standard of care was appalling to say the least. I hope that you can talk it over with someone when you feel up to it. Take care x

    • July 15, 2018 / 9:44 pm

      It’s a shame it’s not a rarity to have such negative experiences; I’ve struggled with ‘nightmare’ nurses before and many people have had problems with not being able to get a bed, but it really shouldn’t be as prevalent as it is. Thank you for the lovely comment. I hope you and the boys are keeping well – have a good week ahead! =]

  27. July 13, 2018 / 2:35 pm

    Reading it was horrible enough. Please take care now, and hopefully you recover at home soon!

    • July 15, 2018 / 9:44 pm

      Thank you lovely – I hope you are well! Have a good week xx

  28. July 13, 2018 / 3:15 pm

    Rest well, Caz. I’m so sorry to hear about this traumatic experience. It’s not like the surgery and situation isn’t enough to go through, they had to make it worse! Sending hugs and hope you feel up to your regular speed again soon.

    • July 15, 2018 / 9:46 pm

      It really doesn’t help at all to have nurses like that and struggle to be believed or helped, or to have issues with not getting a bed on a ward. I just wish I were in the minority having such experiences but sadly I’m definitely not. Thank you for the lovely comment, Sheryl, it’s very much appreciated. I hope you are keeping well – take care and I hope the week ahead is a positive one for you ♥
      xx

  29. July 13, 2018 / 10:49 pm

    You have such a wonderful outlook about your surgery, Caz! That’s really important. So many people who have as many health problems as us chronic illness people do have a difficult time compartmentalizing each condition; meaning, each one is taken care of a different way and what helps one may not help another one.

    How horrible that you had such an awful time in hospital! That very much reminds me of my first endometriosis surgery four years ago. My pain was uncontrolled, my nausea was uncontrolled, and they shoved me out the door as fast as they could afterwards while BOTH were still uncontrolled. I wonder if it may be a good idea for you to write a letter of complaint?

    Is there something they could have done to make it so you didn’t have to wear a catheter home to wee? Or was that sort of thing a possible complication of your surgery?

    Sending you healing vibes that you’ll be feeling better soon! 🙂

    • July 15, 2018 / 9:57 pm

      I think the balance between compartmentalising conditions, and seeing the interconnections and your body as a whole, is quite tricky to manage. I do find ‘stoma stuff’ to now be quite different to ‘everything else’, but I’m aware of how things have a knock-on effect to overall wellness. It’s lovely to hear you thought I have a good outlook on my surgery because I often feel too miserable and too negative in my posts, but I do try to be honest and see the positives in things at the same time. I’m so sorry for the experiences you had after your first endometriosis surgery, that’s utterly diabolical. Did you complain or raise the issue with anyone at the time? Part of the problem with that is that people are already ill and exhausted and don’t want the struggle that comes with complaints. No idea on the catheter issue, but I have ‘bladder issues’ (needing to wee every 30 to 60 minutes, constant pressure etc) and after other surgeries I’ve found the same issue of just not being able to wee! I just hope when the catheter gets removed on Tuesday all is well and that the bodging around for an hour trying to get one in hasn’t caused any problems!! I remember now the nice nurse asking in the recovery room if anyone had catheterised before; they said you should be in a ward where nurses know how to do it, but then someone said she’d done in twice before a very long time ago but “would give it a go”. Eeek.
      Anyway, thank you so much for sharing your experience and for the lovely comment and healing vibes. I hope you’re doing okay – Take good care and have a good week ahead 💕 x

  30. July 14, 2018 / 4:35 am

    I am so glad you made it home and now can focus on healing 😊💕

    • July 15, 2018 / 9:59 pm

      I’m glad to be home and doing a little better too – thank you so much for the lovely comment! I hope you are well, DeeDee – have a good week! 🙂

  31. July 14, 2018 / 1:37 pm

    Oh dear. I’m happy to hear you’re back home and recovered (mostly) but I do hate that you had to experience that!

    • July 15, 2018 / 9:59 pm

      I’m glad to be home and more comfortable! Thanks for the comment! I hope you have a lovely week ahead! 🙂

  32. July 14, 2018 / 3:14 pm

    Oh dear….. Sorry to hear you had such a hard time. I was in hospital last months for 3 days recovering from a operation, and was treated so well I didn’t want to come home! I still miss one of the nurses. I know that morphine can affect your emotions and make everything seem worse, so might be worth asking for something else next time. Hope you feel better soon x

    • July 15, 2018 / 10:01 pm

      It’s wonderful to hear you had a positive experience with the hospital & staff, it always restores a little faith to hear these positive stories. I do hope you’re doing okay (and hopefully in no rush to return there or see the nice nurses again!) Morphine really can mess with your emotions but it’s the only thing I can seem to tolerate, through IV, that is effective without sickness. Thank you for the great comment – Take care and have a good week 🙂
      xx

  33. July 15, 2018 / 2:49 am

    I’m so sorry for you horrible experiences. Makes me hate LIKING the post, but I’ll do it for the hope of the benefit from your surgery. I pray you continue to heal and be less stressed. I pray this surgery does what you are hoping for and need.
    Take all the time you need for you!! As a dear of mine (named Caz) always tells me, make sure to get all the rest you can and take care of you! 😉
    Me and God love you!

    • July 15, 2018 / 10:03 pm

      Hah, darn, using my own words of advice that I can never take myself! 😉
      Thank you so much for your kindness, Gail, it’s truly appreciated. I am doing a little better already, and I’m glad to be home. I hope you are doing okay and that you have a positive week ahead lovely 💕 xx

  34. Bonnie
    July 15, 2018 / 4:06 am

    I am sorry to hear of that horrible ordeal in the hospital. I hope you are on the mend, at home comfortably now. Take care of yourself Caz, you are an inspiration.

    • July 15, 2018 / 10:04 pm

      That is very kind of you, Bonnie, thank you very much 💕 I hope you are doing well, and that you have a good week coming up 🙂

  35. July 15, 2018 / 2:57 pm

    That sounds awful. I’m glad there were at least a couple of people that helped and I can imagine why you’d rather be at home. Try to take it easy though and not to do too much until you really feel up to it.

    • July 15, 2018 / 10:05 pm

      Those couple of nurses who listened and cared and were compassionate really were absolute life savers, I’ll be forever grateful as they make all the difference when the majority are ‘nightmare nurses’. Thank you for the kind comment – Hope you had a good weekend and that next week is a positive one for you 🙂
      xx

  36. July 15, 2018 / 3:54 pm

    As a nurse who is now disabled, I’m so sorry that was your experience. I’ve been on both sides of the bed as the caregiver and the patient and so I can commiserate with you. I hope you are resting well now. <3

    • July 15, 2018 / 10:09 pm

      I can imagine that being hard, having experienced nursing life and then the view on the other side as a patient. I appreciate your kind comment and I hope you are keeping well – take care and have a good week ahead 🙂
      xx

  37. July 16, 2018 / 3:51 am

    Oh Caz this was such a sad read. I’m glad you had the experience to fight your corner though (although it’s a shame you need experience to handle these situations as no one should have to go through this once). It can be hard when you have to rely solely on the professionals eventhough your body says otherwise. Hope you have a wonderful recovery and rest rest rest

    • July 16, 2018 / 2:11 pm

      Thank you for the great comment, Vicky, you hit the nail on the head. I hope you’re doing okay – have a great week ahead  ♥
      xx

  38. July 16, 2018 / 8:08 am

    There’s no word that can comfort the pain you are going through now.

    I can only wish that you recover soon and never be subjected to such bad hospital services again.

    Get Well Soon, Caz! A lot of love from my mother and me.

    • July 16, 2018 / 2:10 pm

      That is incredibly kind of you, thank you! I hope you are doing okay – have a lovely week  ♥ xx

  39. July 16, 2018 / 6:13 pm

    Hey Caz,

    Sorry to hear that you had such an awful experience. It makes me angry and sad to read this. Health professionals should actually listen to patients, but it’s good that there were two angel nurses. 🙂 At the same time, I’m very happy to hear that your surgery was successful and thank you for sharing your experience with us. xx

    • July 17, 2018 / 4:03 pm

      I agree, nurses should listen and act, it’s sad that not all do. Thank you for the lovely comment, Rose – have a great week! 🙂
      xx

  40. Samantha
    July 17, 2018 / 5:52 am

    Oh my dear – I am sorry it was so traumatic, but you’ve done so well, you came through it! Just wishing you a speedy and problem-free recovery now. 😺💕xxx

    • July 17, 2018 / 4:04 pm

      Thank you lovely – have a good week  ♥

  41. July 18, 2018 / 2:18 am

    Glad you’re home and looking better. I’m sorry you had to go through all that – hopefully it’s worth it in the end.

    • July 22, 2018 / 8:12 am

      Thank you lovely. I hope you’re doing okay & having a good weekend!  ♥

  42. July 19, 2018 / 4:25 am

    I hope your feeling better! Sorry to hear about your experience in the hospital. I’ve only stayed once for childbirth and its put me off wanting to go back a second time :s

    • July 22, 2018 / 8:14 am

      Hah oh dear, your time in hospital was that bad too? I’m sorry, especially as having a child should be such a wonderful (albeit painful and scary I imagine) experience. Thank you for the lovely comment. Hope you’re having a good weekend 🙂
      xx

  43. July 20, 2018 / 4:17 pm

    Thank goodness for those nurses! Angels ♥

    • July 22, 2018 / 8:14 am

      Definitely, not sure what state I’d be in if they weren’t there! Hope you’re having a good weekend Christy 🙂
      xx

  44. July 22, 2018 / 5:36 am

    I’m sorry to hear of your horrible experience in hospital. The stoma bag tubing hanging out of your stomach kind of gives the’ Looks can be deceiving if you don’t ‘look ill’.’ away. I can tell you’re ill. But you can get some pretty cool stoma bag pouches. https://www.pinterest.com.au/pin/488288784573154039/
    I live with an ‘invisible illness’ too which you really can’t see. and when you can that means I’m really unwell. It’s so much harder living with a chronic condition where you look fit and healthy.

    • July 22, 2018 / 8:11 am

      Thankfully the catheter is out so there’s no tube anymore, hurrah. I do have a funky stoma bag cover which I posted about here – http://invisiblyme.com/2017/07/19/sun-sea-stomas/ Thank you for the link though as I’d love another browse to get some ideas, maybe get a new one to treat myself! It is hard looking ‘fine’ and well, because with it comes judgements and assumptions. Hopefully, little by little, we can all raise more awareness of the hidden nature of many illnesses and disabilities. Thank you for the great comment xx

  45. July 24, 2018 / 1:45 am

    Omg that’s horrible. 🙁 I’m sorry you had to go through all that. What a mess. I hope you have a smooth healing process from this point out. <3 Take care and get plenty of rest. 🙂

    • July 24, 2018 / 4:19 pm

      It’s a shame too many people have these sorts of bad hospital experiences. Thanks for the comment and kind wishes lovely – have a great week! 🙂

Leave a Reply

Your email address will not be published. Required fields are marked *